Feel dismissed by Hospital. Unsure whether to ask for second opinion or trust them.

FormerMember
FormerMember
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Hello, I am new here.

About seven weeks ago I found a small round hard lump in my breast. I saw the GP who referred me straight away to the hospital and I had my appointment quickly, now three weeks ago. I was told that the lump has been there for a long time as it was on previous routine mammograms. I explained that the lump is new to me and asked the consultant radiologist to check it again. She had another feel and said it was fine. I have NEVER felt this lump before. I am in my early 70s. The lump is still there, not going away.

I came away much relieved BUT I have this lingering feeling that I should not dismiss a round hard lump that is not going away as the hospital has done. I really feel that my worries were not taken seriously. I had the mammograms and also the ultrasound plus the nurse felt it and also the radiologist.

BTW I have not had a letter from the hospital outlining what happened at my appointment. The GP printed off a copy for me but it is full of technicalities which quite frankly I don't really understand. Surely the hospital should write to me?

Should I get a second opinion? If so, at same hospital? How to go about that? Or can I get it done privately somewhere else and pay for it which I am happy to do to save wasting NHS time? If I get  a second opinion privately will that then prevent the NHS from treating me under the NHS if it turns out that it is breast cancer?

Please can one of you lovely ladies give me some help with this please?

Many thanks

  • you perhaps could ask for a biopsy to be done if nhs refuse then go private. The NHS will take over care if biopsy shows anything. 
    you can also ask to see your medical notes you have to request them and there maybe a small charge as they be i. A storage facility. Then you can look through previous reports and see if lump mentioned and if so what size etc 

  • Do they say what the lump is?  You could arrange your own private appt or you could ask your GP to refer you.  Seeing someone privately shouldn't have an impact on future nhs follow up, if needed x

  • FormerMember
    FormerMember in reply to Dc6

    Thank you so much for responding. Here is the report that the hospital sent to my GP:

    Mammo: Both

    Ultrasound: Right

    Clinical Information: Lump in right breast. On examination breasts and axillae NAD

     

    Report: Bilateral mammography: Both breasts have a predominantly fatty background pattern with sparse glandular elements bilaterally. In the right breast the well- defined opacities in the right upper outer quadrant and right lower inner quadrant are unchanged from the previous mammogram dating back to 2014. No sinister features demonstrated in either breast.

     Right breast =M2

    Left breast =M1

     

    Ultrasound right breast: the marked area in the right lower inner quadrant was scanned and there is a superficial well – defined hypoechoic mass just deep to the skin which corresponds to the longstanding well – defined opacity seen on the mammogram/area of patient concern. No intervention performed. U2

    The patient has been reassured and discharged.

    What is a hypoechoic well defined mass?

    Are you reassured by this report?

    Should the hospital have sent me a letter reporting their findings?

    Thank you for your help.

  • FormerMember
    FormerMember in reply to .mel28

    Thank you so much for responding. See above for the report sent to my GP.

    Should I be reassured?

    Thank you

  • FormerMember
    FormerMember

    To add, the lump is still there, small hard round and I have never noticed it before.

  • If it was me I think I would want a second opinion/biopsy to put my mind at ease, especially since you were not aware of this lump previously.  

    I have had really good care from my local hospital since I found my lump and they did say from day one it was suspicious of cancer, so obviously they can tell a lot from scans etc  but my cancer was much bigger than any scan picked up and also 7 lymph nodes were positive which were not picked up by scans.  Size of cancer  and lymp nodes confirmed positive from histology only.

    If you can afford it and it gives you peace of mind, then there is no harm in getting a 2nd opinion x

  • Have you spoken with your GP?  My cancer picked up via routine screening in 2015.  My annual mammogram as follows up to my treatment ended November 2020 at 5 year mark so I had my first routine screening October this year.  I was recalled as they wished to check some calcifications to previous 2015 mammogram and subsequent years.  They did a magnified view of two areas and these were unchanged to 2015 so they happy they are of no concern.  What I did find out at this appointment m which I had no idea about was I have about 10 marker clips in my breast where I had surgery.  Strange I thought surgeon had never mention over last 5 years.  I've reported each year niggling pain flare ups and told normal due to nerves being cut but I think it's the clips.

    If you want total peace of mind ask for second opinion.  While I found my hospital and screen unit thorough I know from this site other ladies have had issues.  

  • Hypoechoic means it doesn’t reflect back the ultrasound waves, which means it’s solid. Hyperechoic are usually fluid filled cysts which the waves bounce off. Solid lesions should be investigated ie biopsied as they can be cancers. Presumably the hospital is assuming it’s benign because it was also on the 2014 mammogram, but I totally understand why you’re not happy and want a second opinion. Mistakes can happen, even with the best will in the world and with overworked, stressed out healthcare staff… well there is a concern. If your GP isn’t helpful contact PALS, the patient advocacy service

  • Anabrock answer answers the queries you raised very well. Basically the report says there is nothing of concern and since the lump you were worried about hasn’t changed since 2014 then it is assumed it isn’t cancer , so it is good news but as a word of caution assumptions can be dangerous so I would push for biopsy 

    You also have a right to a second opinion under the NHS charter and NICE guidelines 

    So relax a little bit but still push for biopsy 

  • FormerMember
    FormerMember in reply to Dc6

    Thank you to everyone for their help, much appreciated.

    How do I get a second opinion? What is the mechanism?  I really don't want to go back to the same clinic at the same hospital as I may well get the same staff who have told me it's all fine. 

    Do I go to through my hard pressed GP ?

    I think a biopsy will be the only way to reassure me that this new lump is OK.

    No-one has ever told me that there was anything to see on any of the mammograms I have had over the years and certainly not in 2020 at the most recent one nor at the 2014 one. Surely this would have been flagged up to me?