Second Time Around

FormerMember
FormerMember
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Hi,

I’m new to the forum, having recently been diagnosed with oestrogen-related breast cancer for the second time in twelve years.

It’s so good to have a place where we can discuss stuff and support each other through an exceptionally difficult time. Being positive and staying cheerful can be hard under these circumstances, but personally, I’ve found that leaning on friends & family, saying no to the things I simply don’t want to do, swearing a lot (I try to avoid doing that in company) or thumping a pillow when it all gets too much, are great coping strategies Grin

I originally had DCIS which was discovered in 2009 at the age of 46, after a routine mammogram. I had no signs or symptoms, and they did a lumpectomy. Unfortunately they didn’t get a clear margin and a week later I had to have another op. I had no chemo or tamoxifen, just three weeks of radiotherapy.

  • This time around, I felt a lump and saw a dent in the side of the same breast. A mammogram, ultrasound scan & biopsy confirmed it was a 28mm tumour. Further tests indicated that the likelihood of it having spread to the lymph glands was low. So I know I’m lucky if that’s the case.

    I already knew it would have to be a mastectomy this time around, and discussed the possibility of having a double as I don’t want to go through this again in the future. My oncologist has suggested the options for surgery, although I’m still waiting to see the surgical team. 

    I’ve decided to go for a Diep procedure, and wondered if there are any ladies out there who have had this and would be willing to share their experience. Also, if anyone is going through anything similar, it would be great to hear from you. 


  • HI

    I've not had a Diep, but I wanted to reply to your post to 'bump' it back up as it had slipped to the next page and there may be some ladies around now who can help you.

    Kindest wishes,  Lesley

    Community Champion Badge

  • FormerMember
    FormerMember in reply to lesleyhelen

    Thank you Lesley Grinning

  • Sorry me too ...not had Diep maybe search and read on thread of any in this forum for people who have?

    C x

  • Hi

    I've come across this post recently where has said she is happy to help if anyone wants any help with a Diep.  Perhaps either she will respond to being tagged, or you could pop on her post to ask for some advice as I see you still haven't had anyone pop onto your post with some advice.

    Kindest wishes, Lesley

    Community Champion Badge

  • Hi Tin Angel you will see my earlier comments on the Diep Flap operation. I can really only add that although it is a big operation it is so worth waking up afterwards and still having a breast. Once the swelling and scars fade the results are fantastic. Please feel free to ask me anything you want x

  • FormerMember
    FormerMember in reply to lesleyhelen

    Thank you Lesleyhelen - you’ve been really helpful - I appreciate it xxx

  • FormerMember
    FormerMember in reply to Queen Poppy

    Hi Queen Poppy. I’m very grateful to you for taking the time to reply to my post Two hearts I have a lot of things running through my mind, but the main things are - if it’s called a Diep flap, do they keep the breast skin and fill that with the fat from the abdomen, or do they replace the skin of the breast with the skin from the abdomen? Also, why do they remove the nipple and ‘store’ it elsewhere on the body before replacing it some time later? I don’t understand why they don’t just replace it at the time of reconstruction. Xx

  • Hi Tin Angel it’s completely normal to have a lot of things running through your mind about this. My experience was that they retained the breast skin and reconstructed my new breast from my abdomen fat. I had my nipple removed and was given the option to have it reconstructed after my chemo ends next Spring. However I was not told anything about storing it so don’t know if that happens. I suggest you find out more about this from your breast care nurse who should be able to explain everything to you. Good luck with your treatment x

  • FormerMember
    FormerMember in reply to Queen Poppy

    Thank you. You’ve been so helpful and put my mind at ease on a few things xxx