Ductal carcinoma stage3

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Hi there, I am new to this group too. 

Diagnosed with ductal carcinoma grade3.  I've had my lumpectomy and sentinel node removed and I got results on Thursday to say nodes are clear,  have to go back into hospital on Monday for another op called cavity shave as the tissue from outer margins are precancerous..has anyone else had the test Octotype done to see if you need chemo. I will get this result in 2 weeks time. Has anyone got away with no chemo on a grade 3 Estrogen positive..thanks and good luck to all of you ive been reading some of your stories.xx

  • I was diagnosed following a routine mammogram last November with stage 2 ductal carcinoma, oestrogen receptive HER negative, grade 2.  I had a lumpectomy & sentinel node surgery which showed no spread but because my tumour was slightly bigger than they expected I was offered an OncoTypeDX test to determine whether chemotherapy would benefit me. One of my margins wasn’t clear so had second op which was successful. My recurrence score came back at 9 so chemo would not benefit me. I was prescribed Letrezole for the next 5 years and following. 5 days of  Radiotherapy  was discharged with an ‘open appointment’ which means any problems or issues I have I can go straight to the breast care dept rather than going through my GP. I am due my first mammogram at the end of November which is the anniversary of my first operation. I have been told I am in remission. 

  • Hi and yes, I was grade 3 oestrogen +.  I had surgery and the Oncotype test.  My score was very low so just radiotherapy, which I completed yesterday.  Best of luck to you for your next steps xx

  • Thats good to hear,  and glad you've all that over you now..I'm just feeling a bit anxious this weekend, and started wondering what makes the score determine your treatment.  So I'm reading up on it as we're all different..xx

  • Thanks for your reply,  are you also on hormone treatment,  did you get much radiotherapy, glad your s is over you too..xx

  • I had 5 days of radiotherapy last week.  I haven't started the medication yet - going back to oncologist mid November to sort that out,  I think the grade 3 definition is quite scary but I'm trying to be optimistic that if it's caught early it needn't be so awful xx

  • Yes I think your right, it is the grade 3 that's worrying me. I'm trying to stay positive and doing well so far. I think I'm reading too much about it so I'll stop that now and just listen to the Drs when I go for my results..Hope your doing OK after radiotherapy xx

  • Appointment is tomorrow morning for results, hope your all keeping well. I'll let yous know the outcome..xx

  • Best of luck with your appointment tomorrow. xx

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    1. Your oncotype score is from them looking at your actual cancer. How the genomes work etc. Doesn’t matter on the grade as it could be grade 3 but be a very low score re reoccurrence. I was scored at 11. I had 5 sessions of radiotherapy but I did have one node affected but still no chemo required. I was pleased it actually looked at my cancer cells instead of being just a percentage on an average of women. Good luck xx
  • Well I went for results yesterday, oncotype score isn't back yet. They're hoping it will be by the end of the week. 2nd Surgery went well, all margins now clear. More content Sunflower