New Diagnosis - 2nd Time in 5 Years

A few of us I think, so sorry you found yourself back here. High grade DCIS on 2013 for me, invasive BC now, same breast though, it’s a massive blow. You think you’ve done it and you’ll be ok then find yourself with a whole lot more rubbish to deal with. They won’t be able to tell you your long term diagnosis until all the results are back so it’s a waiting game now. I hope you have good support around you, all the best to you x

Thank you Anna. I do have good support luckily, but the waiting is the hardest part. I now have a date for my MRI (1st Nov), so only another week to wait and I shall make sure that I keep very busy. X

The waiting is indeed the worst, hopefully not much longer now, big hugs x

Hi. I am not quite in the same position as you Theresa28, but on 12.10.21 was diagnosed with invasive lobular carcinoma in the right breast. Today I had my MRI (I had to chase this as it hadn’t been marked as 2 week wait, but that’s another long story) and after the MRI today was told that it will ne another 2 weeks for the MRI report to be done and sent to the consultant. Mine was picked up through screening mammogram and I haven’t yet met any of the team who will be treating me because of having to wait for the MRI.  Like you, trying to stay positive. Best wishes 

Hiya, I had treatment for DCIS in 2013, lumpectomy followed by 15 rounds of radiotherapy.  I had 5 years of clear mammograms then in 2020 was diagnosed with invasive cancer in the same breast. This was obviously a shock and to top it all my mum was diagnosed with terminal bowel cancer on the SAME day. Also my brother was having chemo following bowel/lung cancer operation. Our family is cursed with cancer and because of this , that is why I had extended mammograms (10 years). I am thankful that I was being regularly checked as the invasive cancer was detected on my 6th mammogram.

Anyway I had a right side macestomy in between my mum passing away in March 2020 and her funeral, but managed to actually get to her funeral thankfully as only 9 people  were allowed to go because of COVID. 

The operation went well and I was put on letrozole for 10 years. Also on ad-cal and Alendronic Acid tablets as dexa bone scan detected oestopenia in my spine.

Bit stiff in ankles and feet when I get out of bed in the morning but soon come round.

Been positive throughout the last 21 months. Maybe I just had too many things going on so couldn't concentrate on just me as had to be there for everyone including my dad and two teenage children and hubby.

If I can get through the above and come out the other side there is so much hope for you ladies. We are stronger together. Let's fight this war together and survive.

BoobyJ

Thank you for your response - I'm sorry to hear about your mum.

I have now had my breast MRI (comical if it wasn't so uncomfortable!) and have my surgeon's appointment next Tuesday.

There is a lot of cancer in my family and it worries me that I now have a completely different type of cancer in the opposite breast. It's almost as if it's going to get me anyway, so why not now? Daft I know and irrational, but now and again I have the odd black thought.

At the moment though I am trying to be positive - not just for me but my family as well.

Xxx

Thank you Rosebee,

MRI all done. Just waiting to see the surgeon now.

I have also received the letter from the consultant I saw and it confirms: Lobular cancer grade 2, 2 sites in left breast (17mm + 11mm), ER 8/8, PR and Her awaited.

I understand what it means other than the bit about the PR? 

Anyway....roll on next Tuesday, I can cope when I know what it is and what's going to happen.

Good luck xxx

Hi Theresa28. I’m pleased that you don’t have too long to wait to see the surgeon, although any waiting is so difficult. When you do there will be a plan for your treatment/surgery and presumably you will meet the breast care nurse. PR = progesterone receptor. I had my MRI (interesting experience) Friday 22nd Oct and then saw the surgeon on 28th October. The MRI showed an area in the left breast - a group of 5 calcifications each one 5-8mm over a area of 51mm. In the left breast there is another 6mm area. I now have to go back for another ultrasound (tomorrow), plus a consultation with the anaesthetist in a couple of weeks and a MRI guided biopsy (date not known). These areas are in addition to the original one found. So more waiting around for further investigations and results. I then go back to see the surgeon again. All the best, hope all goes well with the surgeon next Tuesday, do let me know how you get on. Ros

Thank you.

Yes keep positive it defo helps. Good luck with your appointment on Tuesday.

Be thinking of you.

Take care

BoobyJ

Hello theresa28, I am very similar to you, I had extensive dcis diagnosed in 2019 and had mastectomy in my right breast and then this year invasive cancer in my left breast which had also spread to the majority of my lymph nodes.  I thank my lucky stars that I was having my yearly mammograms and that it was picked up early, had I had to have waited for the 3/5 year mammogram I may have been riddled with it. I have had lumpectomy, chemotherapy and finished radiotherapy last week. I just tell myself that this is my journey and remain positive as I’m sure it helps. Be brave Be strong and good luck with everything.