Just Diagnosed with DCIS, need mastectomy

Hi ladies

I am so grateful that you shared your experiences. It really gives so much comfort.

Eltwins, hope all goes well this week, not long now to Wednesday...don't for a minute think you're on your own, u have us here OK to just chat and talk things through...

Haveacuppa, you are right to fall back on codeine if ever, I also would do the same. Coping OK so far and I think the big plaster is really helping with keeping everything in place too. I feel slight tingly at times and in the night I get pins and needles...I was so sleepy yesterday I forgot to take meds and had to wake up 1.30am to take pain meds lol

Mel, I applaud your hubs. He is being so brave for you and I can sense he feels so proud and love you even more now you both been through this experience have made both of you much stronger. Bless him! Him staying calm and assuring has helped your healing so much!  I have wound check up next Wed that I am counting on in laws to drive me in.

Deeds  so sorry you had the ordeal twice. I feel you're doing so much for yourself to make u feel better and back on track, well done on that! I was told by BCN...even if when doing exercise if it pulls I mustn't then stop exercising. Keep pushing thru with the exercise sensibly. The wound is healing and that you don't want the new bits to become hard and stiff hence why you need to push thru. Of course she says within reason...not go running a marathon type u know. The tugging is just a bit like when we fall off the bike and the wound pulls when it's all new and healing. You're right we need help right now and must rely on others. I know how bad I felt using the mobile loo at hospital etc. I felt not nice to ask someone for pee help but they prefer so than u falling over and hurting yourself more. 

Ana, how you feeling in run up to tomorrow? We are in the same boat. And tomorrow you will feel that much relief and on road to recovery. We are here for you if you need us...but rber if we can do it, you can too...Will be thinking of you!

C x

Hi C,

thinking of you too. I’ve just got back from having my radioisotope injection for the lymph nodes. So I’m feeling anxious but just want to get tomorrow over with. Had a massive hot flush in the hospital though which made me feel icky and now I’ve got to wash my surgical bra again! Leaving 6am tomorrow for the hospital 

Hi Ana

what was the injection like for the lymph node radioisotope like? What’s involved I have mine onTuesday.

I wrote a blog which included my experiences of the Nuclear Medicine department where I had a radioisotope injection. It took place on the morning of my operation. It was really a very simple, quick and relatively painless experience, but from the blog you will see my imagination ran wild beforehand! community.macmillan.org.uk/.../the-day-of-the-operation-21-july-2021

Hope everything goes smoothly for you x

I didn’t even feel the injection. I always look the other way - and I didn’t know it was done!  Little plaster next to my nipple and all done. X

Oh that sounds doable

Hi Ana 

I gather you might, coz I was the same on Monday. I hope u don't mind me saying but

1)trust the medical team, they will do all they can for you. My FIL said look this is an op where they will have done time and time again. Maybe our first so understandably, we are nervous but rest assured these are routinely done for a surgeon! 

2) Keep yourself most calm and stress free. I believe this strongly and will help with your recovery. If your body tense up, and not relaxed it may pose painful afterwards. 

3) Drink lots of water and breathing exercises. Exercises will help keep your body supple...and water will keep your bloods running smoothly to avoid Dvt and keep infections at bay etc 

Trust me after your op you will feel so much better. You having mastectomy like me? You're a strong lady and you have been through once before and you can do it again (((big hugsss))) 

Have you got to go far for hospital? I will be praying and thinking of you my lovely

C x

The injection was nothing but a needle prick. Nothing to worry about. I had mine the morning itself of op too. Hope this puts to rest your concerns.

Cx

It’s in the areola of the nipple, just a small needle but I didn’t look. Stung like a b for me, but only for a second. I think I’m a bit sensitive as I had surgery on that breast recently