Recently diagnosed.

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Hi all, I had a small discharge from my right nipple and went to the GP who examined me and couldn’t feel anything but referred me to the breast clinic. I was seen by a lovely nurse practitioner who examined both breast and was concerned about the right one. As she examined me she managed to get a sample of the discharged which she was going to send for testing. She also sent me for a mammogram and ultrasound. During the ultrasound the nurse found something suspicious and took some biopsies and put in a marker. I then had another mammogram. Went back to see the nurse practitioner who explained that nothing had shown up on the mammograms but there was something of concern on the ultrasound. She arranged an appointment for me to see a consultant. 

At the initial appointment with the consultant I was advised I had stage 2 breast cancer and that based on the results from the biopsies and discharge I would possibly require chemo and targeted therapy (HER2 positive), mastectomy followed by further chemo and perhaps radiotherapy, but treatment plan to be confirmed after results from MRI which she felt was required.

I had my follow up appointment today and she informed me I had all the doctors at the multi disciplinary team meeting scratching their heads as nothing showed up on the MRI. The good news is that I’ve now been downgraded to stage 1. The treatment plan at the moment is to remove the very small tumour and tissue behind the nipple plus radiation. This will of course depend on the histology from the surgery. I may or may not require further surgery and or treatment.

I was just wondering has anyone else had anything’s similar? 

  • Hi ESR, sorry no one has replied to you, I am relying to make sure your posting moves up to the start in the hope that someone else who has been in a similar position to you might reply.

  • FormerMember
    FormerMember

    Hi mine was down graded too from 3 to 2 but only after surgery . So glad you getting this seen too , I had a bilateral mastectomy and it was fine . Hopefully you can have little  lump removed  and fingers crossed that's all . even better ! Take care 

    Jayne 

  • Thanks for that farmerann. It’s just that the consultant said it was unusual that it didn’t show up on the MRI as that’s their most sensitive equipment and wondered if that had happened to anyone else. 

  • Thanks Jayne. It really is tiny 5mm x 5mm! If I hadn’t had the nipple discharge I would have been none the wiser even although I check myself regularly. The way it was caught was the nurse doing the ultrasound. I can’t believe how lucky I have been. I know that might sound strange having been diagnosed with cancer. 
    Hope you are keeping well after your surgery. You take care too. Eleanor

  • MRI is amazing but my consultant explained that sometimes cancer is spread one cell thick over the breast like the roots of mushrooms. It’s there and it’s almost impossible to see but they’re researching finding more cancer at that stage as it’s so much easier to treat if you find it early. In my case some cancer did show up under MRI but not all of it. Probably doesn’t feel like it right now but perhaps in future you’ll feel quite lucky they were so on it? I’m hoping to feel that!

  • FormerMember
    FormerMember in reply to ESR

    Hi ESR , 

    Yes you have been lucky it's scary though isn't it.? This may only be a little  worry but it will have an effect on you emotionally . Take care and see if you can get regular screening. Often when breast cancer clinics have you on their books they keep a close eye on you for  the next few years . Take care 

    Jayne x