Hi lovely people, I was diagnosed with invasive breast cancer a couple of months ago in my left breast, after a routine mammogram. At the time it seemed straight forwards - a lumpectomy, radiotherapy, tamoxifen… but just before the surgery they decided to do an MRI to check all the veins and things for surgery and another tumour was found on the other breast. This didn’t show up on any scan except MRI. It turned out to be a small DCIS. A special core biopsy was ordered under another MRI - a sort of robot surgeon. It was all a bit sci-fi. Anyway, to my shock they found another tumour, called an LCIS or Lobular Carcinoma in Situ. It’s apparently a pre cancer and isn’t dangerous now but it could change. In fact that’s how they think the first cancer started out. So this week I had the tumours removed - wide excision breast surgery or something. Sort of partial mastectomies where they moulded the remaining tissues to form breasts. It’s bruised but doesn’t look too bad albeit really swollen. I’m finding out if it worked on 11th. My surgeon said the left side is looking good but he’s worried about the right and is concerned he still might need to do a mastectomy:( not what you want to hear. My surgery was very complicated and due to my asthma I now have a chest infection and suspected pneumonia. But I’m told there is time to recover before the next stage.
As for the rest of my life, I’m married, have 3 adult children of whom my son lives with us still. He’s autistic but very able. I’m his carer and I also work with autistic people when I’m not off work. I’ve been pretty positive and upbeat but the series of calamities are starting to get to me. And not being able to breathe doesn’t help.
Thanks. When they did the lumpectomies they told me there was an 80% chance it would work, so I felt that was pretty good odds. Until the surgery we had no idea there was invasive cancer in the right breast - despite numerous biopsies and MRIs. So when they opened up the breast and saw it, they were shocked. The concern before surgery was about margins because the area of LCIS was a bit fuzzy (we know why now - it was speckled with invasive cancer). No one had any idea how bad this was. So they took a dozen biopsy samples and closed me up.
Since the surgery on the left breast and lymph nodes was incredibly difficult and resulted in my having over 5 hours of anaesthetic- leading to a chest infection and complications - they couldn’t have safely worked on the right breast at that time anyway. And the biopsies helped inform the MDT. So actually, the plan hasn’t changed that much. Two surgeries were always likely albeit I had hoped to avoid mastectomy. It’s just I’d expected a second surgery to tidy up margins not remove the whole breast. Of course fingers now crossed the right lymph nodes are clear.
They’ve put off the preventative radiotherapy on the left breast until after the surgery, They’ve said it can wait, safely. All my cancers are oestrogen sensitive so I’ll have Tamoxifen or something similar. I’m also possibly going on a trial for women with dense breasts to have screening MRIs instead of mammograms
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