Hi lovely people, I was diagnosed with invasive breast cancer a couple of months ago in my left breast, after a routine mammogram. At the time it seemed straight forwards - a lumpectomy, radiotherapy, tamoxifen… but just before the surgery they decided to do an MRI to check all the veins and things for surgery and another tumour was found on the other breast. This didn’t show up on any scan except MRI. It turned out to be a small DCIS. A special core biopsy was ordered under another MRI - a sort of robot surgeon. It was all a bit sci-fi. Anyway, to my shock they found another tumour, called an LCIS or Lobular Carcinoma in Situ. It’s apparently a pre cancer and isn’t dangerous now but it could change. In fact that’s how they think the first cancer started out. So this week I had the tumours removed - wide excision breast surgery or something. Sort of partial mastectomies where they moulded the remaining tissues to form breasts. It’s bruised but doesn’t look too bad albeit really swollen. I’m finding out if it worked on 11th. My surgeon said the left side is looking good but he’s worried about the right and is concerned he still might need to do a mastectomy:( not what you want to hear. My surgery was very complicated and due to my asthma I now have a chest infection and suspected pneumonia. But I’m told there is time to recover before the next stage.
As for the rest of my life, I’m married, have 3 adult children of whom my son lives with us still. He’s autistic but very able. I’m his carer and I also work with autistic people when I’m not off work. I’ve been pretty positive and upbeat but the series of calamities are starting to get to me. And not being able to breathe doesn’t help.
Another potential “threefer” here. Two days ago I was being prepped for surgery later that morning when a suspected third lump was found (during localisation). Surgery was cancelled and I had two biopsies done: the third lump and the lymph glands as well. I will find out the biopsy results maybe in a few days. Frankly I don’t understand how at first they can find one lump which I was told was found very early and a straightforward lumpectomy; then weeks later a second lump is found and weeks later again a potential third lump all on the same breast with mammograms and ultrasounds being re-run at different stages. It is hard not to feel pessimistic as I keep thinking what else have they missed.
I am having my biopsies on Monday. My consultant said that there are loads of areas of concern so will need a few biopsies. I was devastated to go from talking about lunpectomy one week, to mastectomy the next. I feel like every time I go to clinic, it's just more bad news x
This is how I am feeling. Mammogram and ultrasound first time round didn't pick up all the areas of concern that were picked up on MRI. I was only having MRI in first place because mammogram and scan was showing cancer lump as different sizes and consultant said she wanted to confirm the lump size before proceeding with lumpectony. If all these new areas of concern are cancer, then it makes you wonder how many cancers get missed on mammogram alone x
It’s so hard to stay positive isn’t it. Every time I go I expect to get all the answers and treatment plan but end up coming away with more worries. People keep saying stay positive, I just want to scream! X
My consultant told me in one clinic that time was not important but the correct plan was and then in the next clinic apppintment provisionally booked me for a simple mastectomy even though I said I want reconstruction. To me it seems they rushing it through now but they haven't said why and makes think the worst. My husband was gobsmacked in the last appt and said he wanted to throttle the consultant for getting our hopes up x
It’s all so confusing. And does make you worry when you don’t feel like you have all the information. When is your next appointment? Is it usually an option to have reconstruction at the same time as mastectomy? I thought it was. Did you get the opportunity to ask?
My next appointment is 21st and mastectomy provisionally booked in for 22nd, depending on results of the extra biopsies I am having tomorrow. I phoned the breast nurse to say I needed more time to take all this in and can consultant see me before the day before. The reconstruction I could possibly have, she doesn't do so have to be referred to plastic surgeons but now I starting to feel is it worth it x
Sorry am new to this. So what happens when you are left with one breast? Where do you go to find the "gap filler" ... pardon the ignorance.
A bit new to this C thing.
Also unsure the do op first or chemo first. Some say chemo first then you could see the lump shrink and know then chemo is working as it should. But some just want the lump gone. Confusing times!
Glad you are all clear now! Gives us hope and peace
C x
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