Terrified

FormerMember
FormerMember
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I have just been diagnosed with recurrent breast cancer. I have to wait at least a week to get the MRI and then results. 

I am all over the place with a husband who whilst wonderful does not have any notion of what I'm feeling. He is the eternal optimist, has led a fairly trouble free life and gas zilch coping skills to help me.

I know it's spread to my lymph this time. I had it 6 years ago. Double mastectomy no radio or chemo as they did the oncotype blood test and deemed it unecessary.

I cannot function. I'm convinced it's all over my body and has grown in 2 days. How do I get through the next week? .

Haven't told my adult kids yet. They lost their dad to a rare blood cancer, then I had mine and then I nearly died with covid. They've been through so much.

Not sure whether to tell them now or wait for final results and give them more care free days. 

Any help with the waiting would be great. 

If it's gone to my lungs or bones is that likely to be final? 

Thanks people.  Xxxxx

  • FormerMember
    FormerMember

    Hi Funny Granny 

    I sorry you are back on the journey, you beat it once you can do it again . I don't think that if it's in bones or lungs then that's it! It's just more arduous treatment and maybe this time chemotherapy and radiotherapy. You have made me think as today I have my Oncotype results. I had cancer in one lymph node. The  appointment to day is my first with an oncologist  and I'm very nervous I don't think I will get away without either chemo or radiation but we will have to see. 

    Take care 

    Jayne x

  • Hello and sorry you are having to deal with bc all over again after being through so much already.    I think we can all sympathise with how you’re feeling right now and having to deal with the anxiety it causes ourselves and loved ones.   To say I’ve found the waiting hard is an understatement! 

    Fairly new here myself but what I have learned is that being in your lymph nodes doesn’t necessarily mean it has spread elsewhere and also there seems to be several treatment options available for all stages of bc even stage 4. I heard of one young woman who had lived with advanced bc for 16 years and still stable. 

    Sorry to hear your husband doesn’t appear to know how to handle the situation to help you cope. Have you a good friend you can confide in? I find peoples’ reactions very different and haven’t told some relatives yet because I don’t want to deal with their shock and sadness along with my own but I have my lumpectomy tomorrow so will tell them when that hurdle is completed.  

    It’s a hard decision whether to tell your children but if you decide to do that they might be able to give you some much needed support right now.  

    Very best wishes xx

  • FormerMember
    FormerMember in reply to Wobbly1

    Thanks diverge support. It's good to talk. Hope you recover quickly and your surgery goes as,well as it can .

    I'm lucky to have many good friends who have and will support me. I get the whole thing about not dealing with others distress.

    Take care. Think positive thoughts. A good friend of mine who had cancer twice gave me this piece of advice when going for surgery. "Don't forget. This is their day job. You are in safe hands" 

    it helped. Sending hugs x

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks for your encouraging words. I had the U think it's called little  blood test. My number was 17 low risk so I wasn't given an option of radio or chemo. 

    Whatever happens with the oncoligist. Ask all the questions you need. Don't hold back., so you know all your options. 

    Thinking of you 

    Hugs xx

  • FormerMember
    FormerMember in reply to FormerMember

    Sorry  typo there. It should read I had, I think it's called the Oncotype blood test.

  • FormerMember
    FormerMember

    Does anyone know what they will do if it's in my lungs and bones? A!so anyone any idea how quickly a lump can grow?

    In a week I feel it's harder as bigger.Or maybe it's just because I know it's there

    N

  • FormerMember
    FormerMember in reply to FormerMember

    Cancer grows slowly they told me my cancer would hardly grow in a month X 

    Hope that helps X 

  • FormerMember
    FormerMember in reply to FormerMember

    Thankyou funny granny 

    Yes I will ask all the questions I do hope my number is low fingers crossed x PS I not expecting good news . 

    Jayne 

  • Sorry to meet you on here Funnygranny, as you are having recurrence. I had a large BC lump at diagnosis and at that point they knew that one node was involved. After lumpectomy and sample of nodes were removed they could tell that it had previously been in two nodes [I had the chemo before surgery, and was lucky all the cancer was killed off by the chemo and targeted treatments alone, even before surgery]. My oncologist has written on my consent forms that they are going for cure, so in spite of the above I am being optimistic. I had no further spread on MRI or CT, so positive nodes does not mean it is everywhere further afield.

    Also as mentioned by others, there are threads here where people with advanced BC at diagnosis have been stable under ongoing treatment for many years and seem to be enjoying life.

    I do understand about jumping to the worst conclusion. I think we all do it when we are waiting for tests or results. Try not to do this, as things might not be nearly as bad as your worst fears. Also, treatments have progressed so much in recent years and there are lots of new therapies available. 

    When your BC team have all the facts about your recurrence, they will be able to formulate the best treatment plan for your exact situation. I know it is nearly impossible, but try not to be completely negative.

    Wishing you al the best

    WallyDug 

  • In reply to you question about it being harder/bigger. I felt that had happened to me while waiting for chemo to start. They told me not to worry, that this is an effect of the aspiration biopsies which disturbs the tissues.