Newly diagnosed

FormerMember
FormerMember
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Hi all! I was diagnosed 10 days ago with grade 2 her2+ and  had my breast MRI and CT scan at the beginning of last week, so now waiting for the results and the stage. I haven't been told when or how I will get them, but have been given an appointment with the oncology team on Sept 29th. Seems a long time to wait until then. Do they normally give you your results before you see the oncology team, or at that meeting? Can anybody enlighten me?

In the meantime, I am deciding whether to tell my very elderly parents tomorrow. My mum is an 84 year old stroke survivor completely paralysed on one side and wheelchair user, but with amazing mental faculties and drive. My dad is 89 and showing signs of dementia and possibly Parkinsons, and softer than he makes out. They're both, obviously of that amazing generation. It's a terribly difficult decision to make-to tell them or not-but I feel that they would be so upset if they knew I had held something from them. Also, given that I will most certainly be undergoing chemotherapy, surgery and radiotherapy, in that order, it will become quite obvious at some point fairly soon. Any ideas on how I can make the blow a bit softer for them? 

  • Hi, I think honestly is always the best policy as you wouldn’t want them to fine out from someone else! My dad is 83 and I had to have that big C conversation with him- he has wanted to try and support me. This is the 2nd time he has had to deal with his daughters having breast cancer as my younger sister when through the same thing 14 years ago! As you said it will be very obvious if your not very well with chemotherapy etc. It’s a difficult call and very personal to each individual. Good luck xx

  • FormerMember
    FormerMember

    So sorry you've joined this "club". 

    You asked a few questions which I hope that others will be able to answer too.  I had to wait for the multi-disciplinary team (MDT) to meet after my scans / biopsies and then the Consultant Surgeon talked to me separately about was going to happen next.  But it might be different in different hospitals.  Your Breast Care nurses would be able to let you know what to expect if you phoned them up in advance.

    I have a very frail father who was 89 at the time of my diagnosis and I waited to tell him about what was happening after I had some clarity about my treatment pathway.  I had to frame it as positively as I could (talking about advances in medical science is now and how excellent breast cancer treatment has become) as he's a great worrier.  My mother has late stages of dementia (it is hard to know if she recognises me) and I did not talk to her about it at all. 

    Wishing you all the best with your appointment on 29th. x

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks for that. You have given me the confidence to go for it tomorrow! All the best

  • FormerMember
    FormerMember in reply to Eirian

    Thanks, I'm feeling a little less daunted knowong others have similar ideas to me on this issue. Good luck to you on your path, too. 

  • FormerMember
    FormerMember in reply to Eirian

    Thanks and best of luck to you, too! 

  • FormerMember
    FormerMember

    Hi Jasa I'm sorry you find yourself here. 

    It sounds like an early cancer if your mum is strong as you say I would not keep the information from her as she will be tremendous support for you.  The older generation are so stolic and have strength that we have not developed yet. It sounds as if you have a good medical team around you . I am not sure when they give you results I have had my surgery but have not seen an oncologist yet and was diagnosed at the end of June!  I'm just waiting for the results of one last test and then hopefully will have an appointment. My died 5 years ago he was 87 he was so strong if something was  so very serious like this but he would worry about little things like his gas bill! So yes tell your mum she will be supportive and a tower of strength for you take care 

    Jayne 

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you. In fact, not the best place to meet, but what great supportive people I find here. That's very encouraging positive advice you give. I hope your journey goes well.