Hello - so glad to have found this group.
After assuming I had a cyst (all signs suggested it was a cyst), I received the news today that it’s cancerous. I half heard what I was told, the nurses were brilliant and reassured me I’d be ok but I still don’t know what’s happening. I want to wake up and realise it’s all a bad dream. I never thought I’d be sat here feeling numb and scared. I know it’s small and should be treatable but my mind just races to the most negative outcome. I need to go through the emotions and get ready mentally for the journey ahead (chemo, lumpectomy, radiotherapy)
How do I start my journey to recovery? Any advice or tips would be appreciated.
thank you
Thank you, I have spoken to the BCN this morning who went over everything again and answered new questions I had. She’s advised against googling as everyone’s circumstances are different (and it just puts more questions into my head). I’ve got appointment with the consultant on Monday so will prepare a list of questions - and write down his answers so I can refer back to it during my darker times. They don’t know if I’m triple negative yet so no point me assuming it and creating more scenarios to fret over.
Ive booked my haircut, and enquired about micro blading my eyebrows - doing what I can to get some control of the situation.
Like you, I prefer to be given facts rather than information being sugar coated - that just causes me further confusion as I can mis-interpret messages that aren’t clear…usually reading too much into things!
Aww thank you, yes the BCN confirmed it this morning as the reason no MRI. She also said I’d likely have symptoms if it has spread so I found that reassuring. I also asked if it was definite my samples weren’t swapped (sounds silly but they have told me slightly different things e.g one lump vs 3 small, surgeon didn’t know I had a biopsy 5 mins earlier). There was an address mix up too, Address stickers were being changed. Again she said to bring this up on Monday.
Only a few days to go so going to just tell myself there’s nowt more I can do until Monday, x
You must be feeling so much better now you have some proper answers which are relevant to your biopsy result. No question is silly. I am sure your head will be full of this right up until Monday but try to do something special and nice at the weekend to take your mind off it. Worrying won't help change anything. Your BCN does sound very reassuring. Some people don't want to know detail and some do, so ask away. I was very inexperienced on the practicalities of it all, and found they were very good at reassuring me.
For sure, having such a responsive BCN has helped get through the frequent dips I’m having. Along with this group, I’m slowly piecing together snippets of information to build an understanding of what’s happening.
Told my closest friend today, she’s going to help me pick a new hair style and some scarves. Also went shopping to gets some bits and pieces in prep for chemo - mouthwash, pomegranate, notebook to record side effects…random, I know! X
Hi, I was very open about the whole diagnosis and process, to friends, family and colleagues and whilst this won't work for everyone it really did for me. I also blogged, over on the blog page site. Have a read through if you like. Good luck on Monday - start a notebook, keeps everything in one place!
https://community.macmillan.org.uk/cancer-blogs/b/one-life-live-it
Yes, got myself a notebook specifically for this. I picked out a lovely notebook then decided this situation didn’t deserve something as nice like that so bought the cheapest, plainest notebook I could find!
Motivational quotes work for me really well. I couldn't find a suitable one to deal with the radiotherapy though.
Whatever cancer throws your way, we’re right there with you.
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