Oncotype DX

Hi there.  

The doctors will want to be sure you are on the best care plan they can offer. They also need you to get your strength back before starting another treatment.  Try and rest for now. I know it's hard but it is imperative that you are fully healed and ready for the next phase. We are all here to support you should you need us. Hope all goes well for you. Xx

Thankyou,  it just feels like such a long time to wait..  only 2 more weeks to go though now.

Yes it does feel like ages, and you feel like your in limbo. It will come around soon enough and they will have the best plan that will be Taylor made to your need. Trust the doctors and give yourself time to heal and think positive.  I hope you have a good support network around you. But like I said we are all here for you too. Xx

Hi Mrs LHH, I was diagnosed on the 2nd July with Invasive Ductal Cancer but my road has not been an easy one as I can't get clear margins, I haven't even got to the stage of an oncotype DX Score so presuming this is something that is done when you get your appointment for oncology?  Good Luck and hope you get your plan soon.   

Hi, I know not everyone has oncotype dx screening it depends on all the factors surrounding your cancer apparently. Post surgery my cancer was upgraded from 2 to 3 which means the approach may need to change. I'm also oestrogen + and HER - don't know if that makes any difference. Originally I may not of needed even radiotherapy but now it is being reviewed to see if chemo is needed as well. Because everything has changed, its making me so nervous having to wait so long.

Hi, I’m playing the same waiting game as you it seems! I’m waiting for my Oncotype DX results.!I was supposed to have them last Friday and I had a call Thursday evening to cancel my appointment- I was gutted as I wanted to know what journey I had to make! I’ve now been told they are due in on 16/9 then they are discussed at the MDT meeting so I’m hoping it will be Friday when I get the results. 
I feel your pain it’s so difficult not knowing x

Hi, Yes I've had three surgeries to see if they can get a clear margin on what was originally a 9mm grade 3 dCIS, I am just waiting to see now if this third surgery has managed this, not all NHS trust do the same thing apparently and my NHS is Taunton and they require a 2mm clear margin?  I have been told that because of HER 2 + that I will need chemo along with Herceptin, then radiotherapy.  Its the waiting that is the worst for us all to deal with.  I have seen on here that once you get your treatment plan that you can deal with things much better.  So I hope that is true.  I am taking anxiety meds prescribed by doctor, i dont take them all the time but when I feel I am not coping I can take them!  Take care and good luck with your journey.  I will request to follow you as it seems you are more or less on the same timescales as me.   x 

Yes different NHS hospitals, different boroughs all seem to do different, yes it's the no knowing that is the hardest,  whatever my journey is I'll deal with it, I just want to know so that I can prepare myself as best as I can.

Good luck with everything I hope they've got it this time.

I was told originally it would be approx 2 weeks from my after surgery appointment, so I started chasing when I didn't hear anything,  I then got told to expect another 2 weeks before anything would happen but to chase again a week later, which I did then a couple of days later recieved a call to say my appointment with oncology would be 1st October and I would find out more then, making it over 8 weeks post surgery. If I'd have known it was this long I would've gone back to work so a bit but they originally made it sound like I'd be having treatment whatever that was within a couple of weeks.

I went through this. I had mastectomy and node clearance then the wait…. I was on the fence re chemo as they didn’t think I’d benefit from it but I couldn’t decide although I asked 2 oncologists what they would do. They both said they wouldn’t have chemo. However I was at that point offered an oncotype dx and we decided if less than 25% reoccurance I wouldn’t have chemo. It was 11 so decision made but it did but me back for radiotherapy which I actually had 12 weeks post op. 
waiting for results does tend to delay if not straight forward. 
good luck and keep in touch