Hi I'm new to the group

hello, welcome to the forum. 
You are not alone, and I wish the best for you from the bottom of my heart. Sending you lots of virtual hugs. P.s well done for achieving the milestone! 
My mum has been diagnosed with breast cancer in July, and had her surgery mid august. I am feeling really anxious as well. Initially her lymph nodes were clear on the ultrasound but then the lymph node biopsy after surgery was positive. 
Today, 3 weeks after her surgery we had a meeting with the doctor. Previously he said the cancer is not aggressive but now he said we need to wait further for some results to come from pathology befe any other treatment is given. I’m also worried sick! As I feel like this it’s taking so much time. At least if I knew the next step it would reassure. 
do you know how long you had to wait for the pathology tests?

wishing you all the best 

Hi Daizy03

Thank you for your reply I can imagine it's very difficult for you as a Daughter, I have 3 Daughters who are very worried like you. I had my surgery on 20th July then the results appt was 23rd August so just under a 5 week wait. Which felt like forever. 

I hope your Mum has a good outcome, the waiting is the worst! I know once I've had further surgery the surgeon has said it will be another 5 week wait, you just feel like you're in limbo all the time.

Wishing your Mum well and you take care too.

Thank you so much jacqann. Honestly it is the worst part especially after knowing lymph nodes were positive

Wil you be having all the Lymph nodes removed this time? I can imagine. Waiting is honestly the worst bit. But we have to trust, and they know what they’re doing. I really wish the best for you 

Yes I will be this time and more taken from the area where the lump was as it had also spread. Not looking forward to it as the surgery last time caused horrendous pain in my shoulder which I'm still managing with pain relief.

I’m so sorry. I hope the pain isn’t as bad this time. Did they give you good pain relief? And have they given you some exercises to do ? 
My mum also has shooting pain after the mastectomy, been taking cocodamol ever since the operation. This was also unexpected… as thought it would settle down. 

Hi Daisy and Jacqaan I have had a similar experience as you Jacqaan , one of my nodes were positive at surgery so they took them all away . Pain from surgery was not so bad Seroma pain was much worse but finally starting to  go now 6 weeks post op .  The wait for you results seems a long time and that can be so difficult. I have not had results yet to see if I need chemo or radiation my tissue gone to California for an Oncotype test so hopefully i  will soon  have results. The pain from the nodes clearance was not to bad really ,  what l was not expecting was the difficulty I would have lifting my arms up!   However I'm having physio now and it's really helping so maybe ask you surgeon about that before the operation.  In other words don't let the arm stiffness and shoulder pain start get physio straight away to prevent it . I can well understand that you are worried I hope the wait is over soon . 

Take Care 

Hi there

Thanks for your reply your experience sounds very similar to mine, I was given exercises to do post surgery which I do religiously 3 times a day which mainly involve walking your arms up the wall which have helped I'm also on Gabapentin for the nerve pain. The surgeon did say not everyone suffers so we're just unlucky I guess. I also write a journal of my thoughts and feelings which is great to get negativity out of my head 

I hope your results come back ok.

Take care

Hi rhiwbina, hope your well. Good to hear the pain is going. Did you have a second surgery to remove the remaining nodes? Will you be having chemo/radio after. 

Hi Daisy 

No I didn't need a second surgery as all done at once both breasts gone and nodes on right arm gone too! Some taken from left arm too. This horrible Seroma is still hanging around but sometimes I do feel it's a little better. Still waiting for more results and preparing myself for either or Chemotherapy/ radiation therapy. I have found that my surgical team like to tell my little bits of information on a drip drip basics whilst I need to prepare myself I like all the information upfront so I can take time to process it. So at first appointment I wanted to know if I was likely to die from it and all the treatment options I may need .

He did say that he can save my life, at which point I burst into tears. My daughter 38 was with me and she started off crying as well. I'm not usually a crier so I was a shock to me. I am waiting for Velindre cancer hospital to contact me for a Oncotype results appointment. I will definitely cry again if they say I don't need any more treatment , it's been 3 months of worry the hardest part is the early weeks after diagnosis. Started swimming this week as I need to get strong again . Just want to get some normal life back now ,if possible X 

Look after yourself 

Jayne