Saying hi and a question - very anxious

Hi

Have they mentioned any type of reconstruction ? I had a similar CT scan when I was going for my Diep surgery.

Very upsetting to receive this out of the blue though , I do wonder at the thought process of these specialists at times ….
Jo x

Hi Jo, I did talk with the breast care nurse about reconstruction at the time but nothing specific.  Think I'm just going to have to wait and see what they say at the breast clinic on Thursday. I can ask them then whether this appointment came from them. Doesn't stop me from being terrified now though! I'm such a catastrophiser! 

I was looking at the types of reconstruction myself and found Diep interesting. How did you find it?

Hi Lorraine

The CT scan is to make sure that the cancer hasn’t spread. When I was diagnosed last year I was sent for a CT Scan and a bone scan to make sure my cancer hadn’t spread, thankfully it hadn’t. A Ct scan is nothing to be afraid of it only takes about 15 or 20 minutes.

Wishing you the best of luck with your CT Scan and results.

Best wishes

Daisy53

Thank you Daisy - that's set my mind at rest, for a while at least. This waiting is definitely the worst! 

Hi

A letter out the blue is a shock,, and having previously gone through BC you have the added knowledge. I bet its a routine procedure and all for your benefit to discuss what treatment plan needs to be put in place

Silly to say try not to worry but take care and we are here for you x

Thank you - I'm sure you're right. X

Hi Lollypop31

I was sent for the same type of scan as you plus a MRI, after the results of the biopsy of a 5.2cm lump and a swollen lymph node showed I had HER2+ BC in both. The CT & MRI came back clear, which was a great relief. I think it will be routine and precautionary, just to check.

Then I had neoaduvant chemo, lumpectomy, radiotherapy and I am still going thro maintenance zoledronic acid, Herceptin and Pertuzumab. I dont think I would have been given the Pertuzumab if the node had been clear........While I was having the chemo etc I had another 2 MRI scans to make sure it was working. It was very reassuring to know that the dimensions of the lump were getting smaller.

I got a complete pathological clearance from the chemo and H&P etc, which was confirmed in the pathology report. I am very grateful for the treatment which the NHS has given me.

I can imagine how scared you must be feeling and it is perfectly normal. I think all of us feel the same, at the stages where we are waiting for news of the results of tests and scans. Not knowing is the agony and it is natural that our minds do overtime. When you get the results and you know what you are dealing with and what the plan is you will feel better. Treatments and survival rates have improved greatly over the past 20 years or so.

Have faith in your care team to do the very best that they can for you.

Wishing you all the best

Wallydug

Hi Lorraine I think it’s totally normal. I had a follow up CT, MRI and bone scan and so have many other posters. They are checking it’s not spread you’re right but they seem to check everyone so as hard as it is, try not to read into it too much at this stage, good luck xx

Thanks so much Wallydug. I do have faith in my care team, but it was just a shock getting the letter out of the blue. I'd not been told to expect it and I've not even had my diagnosis 'officially' yet! 

Still, I'm feeling much better about things today so onwards and upwards!

Thank you for sharing your story - I hope your treatment continues to go well. 

Lorraine x

Thanks Anna.i think it was just a shock because I've not received my diagnosis 'officially' yet. I'm feeling much better about it today though. I know my care team have got my back - they're the experts after all! 

I hope you're doing well

Lorraine x