Letrozole

Hi

Quite often those that have started taking it suffer from insomnia, so it's interesting that you are having the other way around.  I am due to stop my Anastrozole in 6 months and I must admit to being concerned that I'll be without that extra layer of protection they give - are you concerned in any way? If so, it might be any concerns you have that is causing the insomnia, rather than the actual tablets.  

In the meantime, someone else who has actually finished with them hopefully will drop in to give their experience.

Bets wishes and congratulations on being 5 years NED!

Lesley

Hi Lesley,

Thank you for your comments.  No, I am not concerned at stopping Letrozole and I am a person who suffers from anxiety. My wonderful Breast Consultant has explained I am still covered by Letrozole for many years. I am 74. I have every faith in him and his explanations. Five years ago I was a nervous wreck and was completely fraught but, I'm here to tell the tale.  I hope this  will help you -- a very good friend of mine was diagnosed with a grade 3 breast cancer about 20 years ago now, she had a local excision, followed by chemotherapy and radiotherapy. She's 72 and enjoying life.  Another friend had breast cancer 12 years ago, a small local excision, followed by radiotherapy I'm not sure the drug she was on but, it was not Letrozole.--she too is enjoying life.

Wishing you well. 

Jill

Hello Jill. How lovely to read your comment. I was diagnosed grade 3 bc having been upgraded from 2 in March this year. I am in the same fraught and anxious situation you were in 5 years ago. I’ve had so many complications from being upgraded from stage 2 to 3, as lymph node involvement. I’ve had a mastectomy, however severe complications with chemotherapy resulting in it being stopped which I’m struggling with as I was at risk of relapse anyway because of the lymph node involvement now my chemotherapy treatment has been stopped I’m at greater risk. My next treatment plan is radiotherapy and I’m currently 2 weeks into a 10 year plan of taking Letrozole. It’s so refreshing to know that maybe in 5 years time I may feel the same as you. At the moment though I feel I’m not going to make it, the anxiety, worry and stress I’m feeling is indescribable but reading your comment it gives me hope and reassurance that I too may live to tell my tale in 5 years time. 
Wishing you all the best

Heidi

x

Hello Heidi,

I feel for you as I remember so well that dark time five years ago. I can also tell you about my cousin's wife who was diagnosed 2 months after myself. She had lymph node involvement and because of this had more extensive radiotherapy. She will be on Letrozole for ten years. She is well and very much enjoying life and tells me she rarely thinks about the breast cancer she had. I certainly would ask your GP for something to help the anxiety-I did and that was a sanity saver.

It is a very lonely place to be, take all the help you can find and remember--This too will pass.

All my best,

Jill

Hello Jill. Thankyou again for replying with such a positive comment. I does help to speak to someone who actually understands what these dark times feel like. It’s so lovely to hear 5 years you and your cousins wife are now enjoying life. Mu GP is aware of the stress I’m feeling it’s me that’s reluctant start more medication having never been on anything before other than over the counter paracetamol for odd headache.  Hearing your story helps me so much as it proves there is light ahead of me. By the way did either of you have chemotherapy and if you did, did you manage to complete it? XX