Joined the group today but was diagnosed in January Lobular cancer mastectomy and axillary nodal clearance

Hi Jgau, I also didn't want to tell friends and family and found it much easier dealing with all of it alone.  I did tell my husband. It's hard enough dealing with your own emotions without having to deal with everyone else's.

Glad you have a great medical team helping you.

Wishing you all the best with the rest of your journey x

Hi Godwilling, nice to hear I'm not the only one, my husband knows but no-one else, I found my lump a week after the first lockdown and decided not to tell anyone, not friends or family, I hadn't heard of anyone else doing this so nice to hear I am in good company.  Love Ann

Hello Godwilling 

thank you for replying.  Yes I do believe it’s personal to all of us.  I’m strong and when I’m down I don’t talk to people because they just don’t get it.  How is your journey going?  I wish you well xxx. Farmerann we are like minded - although people now know I don’t talk about it.  All the best to both of you xxx

PS I’m having a bad day 

farmerann

  that's funny as prior to @Jgau and now you I thought I was an oddity.  You are like busses, you wait for ages and then two come at the same time.  

I wasn't going to tell my children either but then I relented and told them the day before my surgery - the idea being that within 24hrs of telling them surgery would be over, cancer gone and me back home.  

I figured I would probably let the cat out of the bag by accident one day and then my children would be hurt and unhappy and how can I expect them to tell me when they have a problem if I don't tell them.

How is your journey going, hope it's a smooth ride.

Oh I'm so sorry you're having a bad day Jgau, is it anything specific getting you done or just this whole awful process we have to go through?

My journey is as over as it can be for the next 5 years - I'm on tamoxifen because my cancer was hormone sensitive. If you click on the picture next to my name you can read my story - this works for everyone who decides to put up their story.  It's a nice thing to do as it's cathartic and also helps others who are going through something similar find you.

Sending hugs and hoping your day gets better x

Thank you I’m still new here and my chemo head hadnt figured out people’s stories.  What gets me down is pain - literally in my butt - all scans clear - so don’t know why! xxx

My children have been amazing after they got over the shock they have been brilliant xxx

Hi Jgau, does the pain radiate down your leg too, or around your hips? Just wondering because I suffer with sciatica, mine is in my hip at the moment but sometimes it feels like it in my butt muscle, does it get better when you try to move about. 
xx

Hi Di54

It seems to be coccyx/sacrum it gets worse when I do things.  I’m nearly chairbound.  I was very active.  It’s been 4 weeks now.  It seems to be mainly on the left but sometimes on the right.  Sometimes its a shooting pain which literally takes my breath away.  I’m taking painkillers but they don’t take all the pain.  All scans are clear, mri and Pet scan.  Just show a bit of inflammation in the sacrum.  I was nearly in tears this morning until the painkillers kicked in.  I’m shuffling about like Mrs Overall (dinner ladies) and that’s how I walk to my chemo appointments.  Xxx 

That is odd Jgau and I cxan see why that would get you down.  Not knowing the cause and how to resolve it must be awful. Is it still being investigated by someone, could it be something like sciatica - not sure if that would show up on a scan or not.

I really hope someone gets to the bottom of it (pardon the pun) for you. xx