Breast Cancer diagnosis

Hi Gotchya welcome to the forum and I am so very sorry that you have had  to find us. Please dont apologise about hiccups we all have them and sometimes they can be funny as well.

Feel free to tell us a bit more about yourself and we are a friendly and welcoming group so hope that you get all the support that you need as you need it. Have a look around and join any of the groups that you think will be of help for you. The team at Macmillan who oversee the site and manage all the upgrades etc are fantastic so any technical queries you have  just ask them and they usually have the answer.

Please keep in touch and let us know how things are going for you.xx

Hi Granny 59 and thanks for my welcome txt.Have had a busy couple of days with appointments been changed for my opp,many thing had to be re arranged from my point of view.

Anyway,am 66years young,have invasive ducal carsinoma grade 1,axilla nodes reported normal on right side.Er8,Pr8,Her2

negative.From what I can make out,seems I am lucky so far.Have pre opp and covid test on Mon 9th opp on Thursday,lumpectomy ,and surgeon will be checking lymph nodes after I have had the blue dye injected into armpit,and before he operates presumably,hoping he will be able to leave nodes alone but think he will probably take one or two out.

expecting pain/discomfort there after.once recovered from this,radiotherapy proceeds for approx 3week everyday phew,not sure which is going to be worse but think it will be radio.Have yet to get an appointment for this,worried if the radio will effect the fact I have CLL(chronic lymphocytic luckimia on watch and Wait,no treatment yet diagnosed 10years about)

have had a couple of wobble days since been diagnosed,about 6wks ago,but mainly stay calm and push it to the back of my mind until each event gets closer,kinda one treatment at a time attitude.

Welcome any info,tips,and expectations from anyone who reads this.

many thanksxxx

Hi Gotchya

Well Done keeping busy with all the appointments, I found the waiting around worst than the actual appointments themselves. So sorry you are going through this nightmare. It is quite a journey and I was diagnosed back in March and my journey is still not finished.

I wish you luck with the Covid test on Monday and the surgery next Thursday. It is hard to push it all completely to the back of your mind but do try to do something nice this weekend to take your mind off of everything.

Once you have recovered from the operation you will no doubt have a further appointment to discuss further treatment with an oncologist and this will be the time you can mention your worry of effects on your CLL ( Sadly I know nothing about this)

Its very easy for me to say and will be a bit harder for you to do but try to take it one day at a time and then step by step.

So get through the weekend first, then the Covid test and then the actual surgery and be kind to yourself and Yell on here if you need to chat.

All the very best and a virtual hug to you. x

Well tonight I am doing a bit of this tomorrow a bit of this‍Suday seeing daughter,from Mon.isolating.In a strange way,cannot wait to get the first step over with.Probably yell Friday lol.

Thankyou for your reply x

forgot to ask,where are you in your journey,would be interested to know

Morning Gotchya

Glad to see you had a few wines last night. I joined you on the white!! I totally understand needing to get the first step out the way. It literally is taking each step as it comes.

It's nearly 7 weeks since I had a full left mastectomy after countless biopsies and MRI scans and two other surgeries to try and save the breast.

I have recently found out I will need a short course of radio therapy and will start that at the end of this month. Meanwhile I am waiting for an appointment to come through for a bone density scan for the medication I will be starting after the RT.

Always something going on but a lot of waiting in between for appointments.

My friends keep telling me the end is in sight to try and cheer me up but its not over till it's over!!

Its been a nightmare journey so I can empathise with where you are right now.

Here for you anytime! x

Hi Gotchya, you sound like you have the right positive attitude towards all this, I’m sure it will serve you well.

Enjoy the rest of your weekend  Good luck for next week xx

Gosh that’s a whole lot of stuff you have gone through,but well done you.I forgot to mention I had an MRI too,was a bit nervous about it but there was no need to be,found the boob holes a surprise,made me smile,but I do have a weird sense of humour.

do you know the name of tablets you will be going on?I have done a bit of reading up on Tamoxifen and Aromatase,and was mentioned in the article about having a bone density scan,which is a good thing,so it can be monitored,I enjoy exercise so hoping my bone density might be ok.I won,t be having Radio for some time yet,think after the opp,they give you a few weeks to recover,I,m thinking maybe late Sept when I might start with it,would be interested in hearing how you get on with it,just think when that’s over and you recover,you should be back to some sort of normality in life.

my sister in-law had a mastectomy 20years ago,she is all good and has been ever since,so there is light at the end of the journey,we just have to keep our eye on the light.Sounds like the worst is over for you with all you have been through,radio is your end goal,stay strong,I have heard it can be tough but can,t be as tough as what you have already been through surely.

Here for you too buddy x

Hi Polly,I sure hope so,it really is a case of,...well bring it on,just want the first opp out the way,recover,and get on with the next part,will be looking forward to Christmas that’s for sure,lol.x

How are you,if you don,t mind me asking.

Hi Gotchya, I had a mastectomy 5 weeks ago, ( CT and bone scan before, all clear )  all good after surgery as in clear lymph nodes and margins, thought straight onto hormone meds, but now chemo possibility to avoid reoccurrence, so another wait for another appointment . Finding the waiting game the hardest, as we all know only too well……I’m craving a bit of normality back in my life……I need a bit of your positivity at the moment!

Keep smiling  xx