Triple negative

FormerMember
FormerMember
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Hi all , dunno what to write really , newly diagnosed well almost 3 weeks ago 

don’t have an actual stage or name for my cancer as such , things seems to have past in a bit of a haze 

my receptors have all come back negative, I thought that was good at first but I know it’s not what they wanted 

I was supposed to have my MIR 2 weeks ago but my period came so it was cancelled and is now next Monday 

don’t have a clear treatment plan yet , just know he’s advising mastectomy , I’ll need chemo and radiation just don’t know what order or when these will start

my consultant was positive he could treat me fully , ive obviously done a bit of research and this type seem so difficult to treat , the more time I’m hanging about waiting the more I’m starting to scare

I’m 38 I have 2 beautiful children 14 year old boy and my baby he’s just gone 2 , I’m terrified of chemo and the effects it will have on my boys

id love to hear from someone with this triple negative breast cancer as at the minute I feel like I’m losing my positivity

thanks for reading  

  • FormerMember
    FormerMember

    Oh you poor darling. I don't know what it means either, and I hope someone helpful can share some insight with you. 

    You should have been given the number of a breast care nurse though, so please call her. She will be able to answer your questions. 

    Wishing you all the best. God bless you xxx

  • FormerMember
    FormerMember in reply to FormerMember

    My nurses ring me every Tuesday and they have been amazing , my HERS result was only given to me on Tuesday gone but I asked for the result , maybe I should have just waited till the 6th July when I’m with my consultant, hopefully by then I will have a clear treatment plan and can start to get my head around things a bit more 

    thank you for your reply xx

  • Hi Rodders69

    Welcome to the site and sorry to hear that you've been diagnosed with Triple negative breast cancer.  I was diagnosed with Triple negative last September and after chemo, surgery and radiotherapy I am now in remission.  Breast cancer is very treatable these days and I know of other people who also had triple negative and are now cancer free

    Wishing your the best of luck with whatever treatments your medical team put you on.

    Best wishes

    Daisy53

    Community Champion Badge

  •  Don't  worry  darling .I was diagnosed triple negative and I am undergoing chemotherapy  now.this type of brest cancer response very well to treatment .Talk to your children and dont show your worries.  I have a son 14 years old too.now you can have more time for them.enjoy of your everything and say to yourself,:

    1. This too shall pass
  • My triple negative cancer was diagnosed in 2015. I started with a lumpectomy and my surgeon told me I was cancer free at that point. However for TNBC chemo and radiotherapy are essential to help stop recurrence because there are no additional treatments as yet. 

    The treatment isn't always pleasant but the success rate for recovery is good these days. Don't google unless you look on Macmillan or the NHS because the facts and figures are either out of date or don't take into account other successful treatments with other cancers which make TNBC look worse than in reality it is.

    It is a frightening disease but there is so much hope these days. With TNBC after five years, it is thought that that particular cancer won't return. I am nearly six years and my friend with the same diagnosis, has almost reached five years in October. You will find others but often, once recovered, people no longer  need the support online so you don't hear from them. Magazines are full of the sad stories of those who unfortunately don't recover but these often don't give the full picture. Everyone is different. I read 60,000 bc cases are diagnosed most years. That has to mean there are a lot more success stories than others.

    Take care of yourself but don't look on your TNBC as something that cannot be beaten.

    Love Karen

    1. I
  • I know completely how you are feeling and what your going through. I was diagnosed 1 month after my 40th birthday of TNBC in November 2020. I received chemotherapy, had a single mascectomy 2 weeks ago and now awaiting date when I start radiotherapy. I have 2 boys aged 11 and 4 . If you have any questions or need a chat, I am here. Take care

  • FormerMember
    FormerMember in reply to Lacomtekp

    Thank you so much for your message, it’s such a relief reading someone’s good story , well done you on your 6 years Clear amazing news 

    I’m taking one day at a time at the minute just want things started so I can see some kind of end 

    lots of love xxx

  • FormerMember
    FormerMember in reply to Daisy53

    Thank you for your lovely message , it’s so uplifting listening to others going through it or have fought hard and are now clear 

    I’m taking one day at a time at the minute, I’m more positive than I was yesterday think I had a bit of a wobble day 

    lots of love 

    Tina xxx

  • FormerMember
    FormerMember in reply to Mummyto2boys

    Thank you for your lovely message, I’m waiting for my dates and treatment plans , obviously all depend on this MIR scan I have on Monday , i want things started now so I can see some kind of finish 

    good luck with the rest of your treatment , I hope your doing well so far 

    lots of love 

    tina xxx

  • FormerMember
    FormerMember

    Hi

    I was diagnosed as TNBC &, stupidly, googled it! Most of the stuff on Web is US based so irrelevant to me anyway but I was extremely concerned as there didn't seem to be a reason for the cancer. They threw in genetic testing as a possible reason but that was also negative to my relief. The nurse said there was no reason I had breast cancer - I was just the 1 in 7. Chemo, lumpectomy & radiotherapy is my treatment plan

     I was dreading chemo but, honestly, I have found it to be nowhere near as bad as I was expecting. They tell you all the possible side effects but everyone is different. To date, I have had no sickness as all. Tiredness has been bad at times - I've just had a nap or gone to bed early. Drink plenty of fluids & listen to what the nurses tell you. If you are worried about anything, give your nurse a call

     Tell your oncologist if a side effect gets too much - they will prescribe laxatives,  stronger anti-sickness meds, pain relief,  mouth wash etc

    Look after yourself

     Hopefully you will have someone to help with the little ones when you're not 100%. Hope you get your scan soon & treatment goes well

    Two heartsCherry blossomxx