I'm new here and newly diagnosed on 8th March with ER +HER2+ Invasive Ductal Breast Cancer.Its in my nodes,and I'm currently waiting for ct scan results.My breast mri showed the other breast is clear,so small mercies i guess.
I start EC x4 followed by Docetaxel x4 with Herceptin and Pertuzumab next week,to be followed by probable mastectomy then radiotherapy.I'm still stunned and in that very surreal place tbh.I guess I'm here because altho I'm surrounded by great people,its not in their body,they don't know where my head is,or want to hear my wobbles or that I'm scared.
Looking forward to meeting people who get it.
Dear Pink71, I understand perfectly what you mean. Unless you’re going through it as well it is hard for family and friends to know just how devastating this diagnosis can be. I was diagnosed with breast cancer on 7th Jan, met up with doctors on the 15th who told me I was going to need a mastectomy as I had two small lumps in my right breast. I had my mastectomy on 26th Jan and was able to go home the same day. This all happening within a month. It was a whirlwind of worry and fear. When I met with the doctor on 12th Feb I was told the cancer had gone and I didn’t need chemo or radiotherapy- just the hormone receptor pills - anastrozole. I cried tears of joy. I now have a lovely prosthetic breast - and people can’t tell the difference.
It is a horrible journey to be on, but this is a great place to share your worries as we all know how you feel. Let me know how you get on. sending hugs xx
Hi Pink71
i am really sorry to hear of you diagnosis and you will find a lot of support from real people here who are experiencing not only a BC diagnosis but the anxieties and worries that go with it.
I have also found good tips of what others have done to make me feel better particularly with symptoms of meds etc really really useful.
I had my mastectomy 12 days ago lymph’s were removed and waiting for pathology report.
it is all doable I found chunking it all down and dealing with each step easier to manage and going with what your body is telling you worked for me best. The cancer charities might be good in your area also. In Belfast they run daily Zoom classes some are really good.
lots of big hugs and you will find lots of support on your journey.
regards gillian
Hi Pinklady,
Our situation seems pretty similar. I’m stage 3 with node involvement, HER2+. Same treatment plan.
I found waiting for results to be the worst part of all, especially the CT scan (I didn’t have to wait for the results only the actual scan). Luckily all was as good as it could be.
I’ve already had 2 chemos. They weren’t as bad as I’d feared, thankfully. The staff were very supportive. You’ll also get a lot of symptom management advice on here too, which is very helpful. Not to mention your BC Nurse.
Not sure where you are but I’ve contacted the Maggies centre near me, they’ll be opening up more soon. Doing a few Zoom classes via them, it helps. We’re all different but don’t be afraid to ask for help.
Yes, people don’t seem to want to hear you’re scared. I didn’t know I was so strong and such a fighter, apparently! I mean, it’s great to be positive but hard to be like that all the time! I think fear of the unknown is nearly always worse than what you find when you actually get there.
Look out for yourself.
Bluebell xx
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