35 year old about to start chemo

FormerMember
FormerMember
  • 181 replies
  • 479 subscribers
  • 19186 views

Hello  I was diagnosed with Oestrogen breast cancer in December.  Had a left breast lumpectomy and sentinel node biopsy in January.  Luckily it isnt in my lymph nodes.  I am going to have FEC chemo starting 15th March.  This I am dreading.  I have ordered a wig, scarves and turbans although I am.having the cold cap to hopefully reduce hairloss. I am 35.  I understand from Victoria Derbyshire to bring hot water bottles and blankets to treatment, books etc and I will be there a few hours.  I would be grateful for any other tips?  I understand aveeno, simple skincare is good and Gin Gins sweets to deal with the nausea.  I was wondering what else to expect?  

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Thank you, good tip for the eye lashes. i have eye brow transfers which should last a week & look really good! 

    The Tropic Organic Nail Nectar is Fab for nails & cuticles.... i have been using it twice a day & can send a link for it if you would like it as my daughter is an Ambassador for Tropic. Infact all of tgeir products are natural so good for us whilst in Chemo etc. I am religiously puttung my "Dark" nail varnish on to protect them as advised & they are fine. 

    xx

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks for tip that sounds good :) 

  • FormerMember
    FormerMember in reply to FormerMember

    Hope your other session goes well :) i forgot to ask if you had any full body CT scans or MRI at any point in your treatment? X 

  • FormerMember
    FormerMember in reply to FormerMember

    Hello :) no I havent had any imaging since 2nd December when I had my initial visit including ultrasound guided biopsy and iv contrast enhanced mammo.  I havent had MRI, CT or PET CT.  They said as it wasnt in my lymph nodes there was no point.  How about you? 

  • FormerMember
    FormerMember in reply to FormerMember

    Yep same as yours too :)had the contrast mammo and wasnt in the nodes so no point in full body ct or MRI. Thanks for the info I thought that they scan everyone but I guess the lymph nodes are the indicators.

    Not long now till your next session, hope it goes well this time. Keep me posted ok? :) xx

  • FormerMember
    FormerMember in reply to FormerMember

    Yes thank you for your wishes :) I hope it goes well.... wonder how I will feel this time next week.....

  • FormerMember
    FormerMember in reply to FormerMember

    P.s I'll keep you posted:) x  x

  • Hi DCS1

    i wish I had known about Beesley Wigs or somewhere like that.

    I went to a local hairdresser and supplier of wigs but there was not many to try on. I chose one out of their catalogue and bought it.  But I didn’t quite like the colour as it really brought out my freckles. So I looked online and bought one from URHair. I ordered very dark brown and waited weeks and weeks for it to arrive. It was supposed to be real hair but I think it was synthetic and it was very definitely red and not dark brown. The style was awful! Everything was awful!  I asked to return it and get my money back as it was not the correct colour but they constantly tried to offer compensation of small amounts or a replacement wig at more cost to cover their extra costs!  
    I had paid by PayPal and raised a dispute but they sided with them. So in the end I accepted keeping a wig that I will never wear and about half of my money back.

    I wrote a review against the wig but they did not publish it.  I would never recommend this company to anyone!

    So I had 2 wigs I couldn’t wear. But I was cold capping and luckily for me I only lost some of my hair and have got away with not wearing a wig at all.

    that said the hair I have got left is a bit weird but my new hair is already growing back in as my last treatment was end of January.

    seems to be growing in curly while I had shoulder length straight hair!  But I count my blessings that I kept some of it to cover the sparse bits Joy 

  • Hi Cinnamon611, apologies for only responding to you now! I switched my email notifications off as my phone was lighting up during the night then haven’t checked in for a while. I finished my radiotherapy over a week ago. It was daily sessions, Monday to Friday for two weeks. I was told that the side effects would peak round about this weekend (2 weeks after finishing) so bit concerned as my husband is returning to work at the same time . It was a doddle after chemo. We have a four year old so will see how I cope as, the same with everyone, with covid, I can’t receive any help from friends and family. I have felt quite down since finishing the radiotherapy. I thought I would be celebrating finishing the first part of my treatment. It’s a strange feeling not having the support of regular contact from specialists and quite lonely and scary. I’m not sure if hormonal (have also started hormone therapy) or it’s just actually starting to sink in about what we have been through. I know it’s common to feel this way at this point so just trying to keep as upbeat as possible. I know work want answers from me but my head is so scrambled at the moment, I’m only just getting my head round the fact that I am still here for now (and whether I have made the correct choices about treatment and the chances of reoccurrence) rather than thinking about work. I know that I am fortunate to have had time off for my treatment as not everyone has this. Sorry for the rant!! 
    I hope that you are feeling ok and that your side effects are settling a bit with meds? You sound like you are having a time of it. 
    Warm hugs,

    Bekky

    xx

  • FormerMember
    FormerMember in reply to BaileyLady

    Hiya 

    1. We are taking URHAIR through the Bank now as my daughter paid on credit card. Stupidly i ordered 3 Real hair! Wigs... as they look so good on the website.... ha ha as you say its really Not real hair!! I wish i could put pictures on but obviously cant.... until we win our case!! I spent £390.00 & 20 emails later they have gone from offering me £39.00 TO £270.00 yesterday!!. Im not accepting it but the other issue is... they will NOT give us the return address.

    I cannot believe Paypal didnt suport you!!  Just to say to any of you lovely people out there "Stear clear of this Very dodgy company" who really dont care that they are causing us so much stress at a very difficult time in our lives!

    Sorry sounds like a rant.... but im on a roll.... Steriod night after my Double Chemo so not much sleep for me & Uncles Funeral tomorrow sadly.

    Actually ive just had a thought.... i may involve/Enquire at Macmillan &  breast cancer organisations!! I do lot of challenging Official documents etc & even whilst off sick i have managed to get a National Guideline changed to improve care for women & their families in Maternity. If anyone else has had bad experieces with URHAIR let me know (apart from. the massive amount of terrible reviews ive found!!! oh dear why didnt i read them!!

    xx