I am a 40 year old single Mom to a 10 year old daughter. We only arrived here a little over a year ago from SA to start a new life. Breast Cancer wasn't part of the plan, but here we are!
I have been diagnosed with Her 2 negative, grade 3, PR+ ER+ possibly between stage 2 and stage 3 depending on how many lymph nodes are affected. I currently have 3 tumors, 2 in the left breast and 1 in the lymph node. There are a few more lymph nodes affected from what I understand and we are doing Ec-T chemo first, 3 cycles of EC 2 weeks apart and then 4 cycles of T 3 weeks apart.
Once that is completed I will have a mastectomy and lymph removal. The CT scan picked up a lump in my other breast as well but that has luckily come back benign.
I start my first session of chemo on Friday and I am petrified for the PICC line just before and obviously the side effects of the chemo. I have been on such a rollercoaster of emotions the last few weeks trying to absorb this new journey I will be on. I have turned to scrubbing and cleaning my house so as not to stress eat... Insomnia is driving me nuts
I am so sorry you are joining us here CrazyKSaffa but you are in good company. I am the same age as you and have a 4 year old son. It is a shock and moving countries too thrown into the mix, you poor thing. That is good that you have a treatment plan sorted. I didn’t have a PICC line so cannot advise on that but keep a note of how you are finding chemo as this helps to provide your consultant with feedback so they can adjust treatment if/when required.
Everybody responds differently to the treatment and so listen to your body, rest when it says you need rest and drink plenty of water then some!!
Ask if you need any further info. I wish you the best of luck.
Warm hugs to you and your family.
Bekky
xx
Thanks Bekky, I will remember to take notes of how I am after chemo. I wish I didn't have to have the PICC line, but my oncologist was quite clear that if I didn't he wouldn't be responsible when treatment didn't go to plan. So I can resist or I can do what I have to to get better.
Hope you and your little one are doing well!
Warm hugs to you and your family too,
Kate xx
It sounds like a good option hun. I was originally told that I would have 6 chemo sessions in 3 weekly cycles. I managed 4 x 3 weekly cycles (3 x EC, 1 x Docetaxel) but they then had to change me to weekly Paclitaxel so rather than having 2 left, I have had to do 6. The veins in my right hand had given up for the last one I had so they had to go into my left hand which increased my risk of Lymphedema. If I had had a PICC line or port from the start, it would have made things easier as they could have taken my blood samples and administered chemo through this. Please go with the flow and know that they believe it is the right option for you so please don’t worry yourself. Knowing what treatment I ended up requiring, it would have been beneficial. The nurse discussed me having a port implanted for my last couple of chemos but the consultant thought there was no point.
If you aren’t happy, please seek a second opinion, however, ladies who have had it may be able to explain to you how convenient they have found it not having to have a cannula inserted each time which can sometimes take a few attempts. It took the nurses 6 attempts to get my last one in!!
xx
Yeah we had 6 attempts to get the radiation injection in for bone scan and I was shattered and the poor nurse had to phone a friend to help her cause I had a total melt down. To be fair it was less than 48 hours after I thought I was going to the breast screening clinic for a cyst... And came out with 3 tumors... I was a right mess! I am so sorry you have had to go through all of this and have the plans changed! Hopefully it's nearly over soon!!!
Bless you! You do adapt. Even when you are given a treatment plan accept that it may be subject to change! It sounds like a PICC line will let you sail through it!
Good luck and keep us posted. Be kind to yourself and treat yourself and your daughter to celebrate little milestones.
Bekky xx
I didn’t end up having the picc line. But my veins are shot and getting the cannula in was a constant challenge. I decided, early on, to be a good patient. And if it was to be a picc, then so be it. Try and go with what the team think is best for you if you can, but, at the end of the day, the whole treatment plan is yours and you have to be comfortable with it and you don’t have to do anything you don’t want to. And I must say if you do something and then you want to change direction, discuss with your team, they are there to help you get through it. It’s not just about the treatment it’s about your well-being and your comfort
Thanks Robbo16, I am doing the PICC cause my veins play hide and seek, but I am upset as I found out yesterday that it is only to administer the chemo and not for doing bloods too. Was hoping it was going to be a one stop shop for everything after it was done
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