OR + HER2 + diagnosis

Hi Bluebell,

Thats really helpful information thanks so much, I’ll definitely look into it and apply.

I spoke to my consultant this morning and now have an online appointment with my oncologist tomorrow and my marker going in on weds. 

Been having some shoulder pain which is really worrying me so will need to mention it. The ultrasound didn’t show anything though but they didn’t check my collarbone / shoulder. 

Ruby x

Hi Emie,

So sorry you’ve had a rough day. I cried all day Saturday. Had a not too bad day yesterday but a few wobbles today. Upcoming appointments making it real and I feel totally out of control of the situation. The info about PIP really helps thanks. 

i’ve been dealing with HR at work and telling colleagues that need to know and it’s a bit exhausting. 

Virtual hugs and keep us posted. 

Ruby x

Hi Talbot,

i hope you’re ok. Do you know when you’ll get your results back? Waiting is so hard.

Ruby x

Hi Emie,

Sorry to here that you have had a bad day. I would say ‘try not to worry’ but I know that’s almost impossible.

Trying to keep busy, going for a walk, watching a film? Maybe a cliche but it might help.

I’m definitely going to apply for PIP tomorrow!

Yes, keeping positive. Wishing you all the best for tomorrow.

Bluebell xx

Hi Ruby,

Hope you felt better after talking to your consultant. For me, even if it wasn’t the best result (thankfully not the worst) knowing was so much better.

Easier said than done but try not to worry to much. I think I was feeling extra pains and pangs everywhere! Even my liver as I had to have a liver function test! All was well!

I’m definitely applying for PIP, even though I’m being paid by work!

All the best for tomorrow. Sending good thoughts.

Bluebell xx

Hi I get my results next Tuesday I was originally stage 1 but my mind is going mad with its moved to a higher stage. Trying to stay possitive but it's so hard .thanks for getting back to me it's so comforting xx

Hi Talbot,

It is hard. Stage 1 is good. I know you’re worried and it’s really hard not to be.

I’m stage 3. It’s treatable. I’m staying positive, with the occasional wobble thrown in!

The wait for info is terrible though.

Bluebell xx

Hi guys

Thanks for your replies, it helps to know we are not alone and so many others are going through the same worries and anxieties. I feel a little better today, good luck to you all, I am thinking of you all xx

Hi Emie,

It’s such an emotional time, especially waiting for your results whilst also dealing with recent surgery. Take it a day at a time and do whatever gets you through the hard times. 

sending virtual hugs your way xx

You hear so many possitive stories nowadays about bc even at later stages so why cant I be possitive about my diagnosis. Xx