Hello

Hi there

I’m so sorry to hear you’re struggling. It is such a stressful time, we will all understand. The waiting for treatment to begin is hard, isn’t it nearly as bad waiting for diagnosis. 

I had a lumpectomy in July last year - like you, er/or+ HER2- and no node involvement. Mine was invasive mucinous carcinoma. So I’ve followed up with radiotherapy and hormone treatment- I’m a few years older than you (49) and was still peri menopausal 

is there anything in particular you’d like to chat about?

xxx

Hi . So sorry to hear your diagnosis and how anxious you must be feeling . I am currently 5 weeks post op mastectomy and sentinel lymph node removal. My left breast was removed . I was absolutely petrified .  I had my results and the cancer hadn’t spread so I need to get my radiotherapy then I’ll be fine . It really isn’t as bad as you imagine . It’s the waiting that’s the worst . 

Thank you so much for your reply, I’m in such a state I’m so scared I can’t bring myself to cope with anything, I’m nervous all the time, thank you again.

We are all the same . The mind works overtime . Try to keep busy . Walking , keep busy , it’s hard but I worked right up Until I had to isolate and it helped greatly . You will get through this . I promise you when I woke up from the op I had no pain . I was terrified but there was nothing . The drains were uncomfortable and I was glad to have them removed mainly because your movement is restricted . 

Keeping busy is a good idea - I was furloughed from work so lots of time to dwell! Walking was good, listening to music or podcasts as a distraction 

it really won’t be as bad as you are scared of xx

Hi I’m petrified too, waiting is torture, was the mastectomy as terrible as you thought? xx

It was far better pain wise . Sleeping comfortably may be the biggest challenge for you ! Have you got a mastectomy pillow ( it’s a god send )  I had a reaction to the anaesthetic that was actually the worst part ! I’m not going to lie I didnt find it easy coming to terms with how I look now but each day gets better as the wound heals and I’m able to drive now so that’s great 

Thank you so much for your supportive reply. xx

Just think , in a few weeks time you will be like me , trying to comfort people who are feeling exactly the same as you did . You will get through this I promise . Take each day as it comes . You will have great days and not so great days but you’ll cope 

I saw my breast nurse today and she gave me a mastectomy pillow a cloth bag for the drain and a softie implant. i will be the same  struggling to come to terms with how it will look.xx