Surprise!! I'm back again!

FormerMember over 4 years ago

4 replies
474 subscribers
736 views

Hi there.
I am 55 next week and live on the South Coast.

I was originally diagnosed with stage 1 BC May '16 after I had a ( not related) breast abscess.
After a mastectomy and immediate DIEP flap reconstruction, it was found that it was aggressive and it was in 3/5 lymph nodes. Chemo was followed by Axillary clearance where positive nodes 3/6 were removed. Radio was the worst by far for me as I suffered chronic fatigue for over 18 months... often sleeping 20 hours a day.

After a routine scan November '19, it showed a nodule in my lungs. I was scanned 3 monthly until I was told the shape of it didn't look like a metastasis, but a new primary!
Was very miffed as I'm a non- smoker.

I had surgery up at Guy's last September to remove my middle lobe and 2/5 lymph nodes. I recovered very quickly.

I was then surprised ( & pleased ) that it wasn't lung cancer, but in the other hand I realised the seriousness of having secondary BC.

I felt SO good that I signed up for a Virtual walk of 874 miles from Land's End to John O'Groats ( I have a year to do it )

However, last week, results showed I have 2 new growths in 2 different lobes. My Oncologist isn't giving me a treatment plan, until I have another scan, then results end of April.
Am a bit confused as to why this is....

Oh well...

ronstar over 4 years ago

So sorry that you find yourself here again, but welcome.

I can understand you being confused - I guess it's good that they are being thorough but the waiting for a treatment plan is the worst, isn't it.

Your walk sounds epic - 874 miles - wow, that's an amazing thing to be doing!!

Hopefully we'll be able to give you some distraction while you wait for your treatment plan - have a look around - there are some long-running threads you might like to join in with and there's the secondary breast cancer group if you want to take a look in there.

Wishing you a lovely birthday next week and look forward to seeing you around on here

WhatHappened over 4 years ago

Hello ,

I'm sorry you are back here, but, well, what can I say, your back in the club none of us want to be in. I feel for you waiting on the scan, it might come though quicker than you think, however, with all that is going on who can say.... we all say the waiting on the results can be the worst time.... April will be here before you know it.

If you have any problems sleeping look out for the AWAKE thread, saying that everyone seems to nip in and out of there regardless of time of day - pop in, they are all nutters in there - but have good strong shoulders when needed. Don't feel alone - we are all here for each other.

Sending love and hugs xxx

I'm hoping this makes sense - only my mind says one thing and my fingers type whatever they like x

Londonmumof2 over 4 years ago in reply to WhatHappened

Did they say why the wait for results was so long? I'm in North London and it's business s usual from what I can see at my hospital, which was 62% covid patients in early January (though not now as figures have dropped a lot in London).

“Remember to look up at the stars and not down at your feet. Stephen Hawking,

seaspirit44 over 4 years ago in reply to Londonmumof2

How’s the long covudLondonmumof2 hope your tinnitus is improving,

Onwards and flatwards (don't do hills) and keep walking if you can!

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Surprise!! I'm back again!