Trying to be positive with triple negative

FormerMember
FormerMember
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Hi - I was diagnosed with breast cancer on 5th January - I got the HER2 result on Wednesday - triple negative.

I'm trying to avoid researching it too much as it all seems very gloomy. I'm having a bit of a wobbly day today, but determined to get through this 

The hospital is advising an LD flap MX with radiotherapy and I'll be honest that it sounds horrendous.

Has anyone had this procedure and found it okay ?

  • FormerMember
    FormerMember

    Hi, So sorry you find yourslef here. It feels better when treatment gets going. All the waiting round is the worst Have your team asked you what you want reconstruction wise? A good surgeon will give you your options and let you decide. Its about the only choice we have after all and its your body. My first surgeon years ago was all for recon straight away but I said no I wanted to wait. I eventually had an implant. I did not like the sound of the other options either. This time round I have remained flat and will stay flat. With a female surgeon this time much more sympathetic and giving me choices. Sorry  I cannot coment on the LD flap not having had it. Had an MX in Nov and all healed fine, you will be fine.  Lymph node clearance Jan 7th and all fine. Maybe someone else can help with the LD flap? I hope you are Ok and can get the help and guidance you need. Sending Big hugs Anna x

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks Anna - it's a lot to take in all at once, but I'm slowly getting my head around it all. I've been referred to an oncoplastic surgeon so hopefully will find a lot more reassurance once I've seen him. It does seem like a very strange operation but options are more limited with Covid x

  • Hello, I had a LICAP on Thursday.. about a quarter of my breast removed and flap reconstruction, took about 4 hours. Not sure If thats the same as yours, but if I can help let me know. I’m keeping my profile up to date I’d you want to read and get in touch, feel free. I trusted my surgeon completely and I think she has done a great job so far. Wobbly days are just part of coming to terms with this, and sometimes the waiting is unbearable, but the outlook for full recovery is so positive. Do what ever you need to get through each day, if you want to cry, cry, if you want to shout, shout, if you want to be quiet and alone ( my preferred coping mechanism) that’s fine too. But yes try to stay away from google, it’s often out of date. Speak with your BC nurse and this group is fab. Like I say feel free to ask away, sending love x