Hi, I was diagnosed with stage 3 DCIS in 2016, had lumpectomy, chemotherapy, mastectomy with immediate reconstruction then radiotherapy. My recovery has been really good, but gradually my implant has hardened and I have capsular contracture ( grade 3) It’s really making me down about the appearance of my body, gets uncomfortable and I’m not sure if I should talk to someone about how this is all making me feel, and should I be thinking about having the implant replaced. I did mention it to my new surgeon, but tbh he seemed a bit reluctant to change an implant after radiotherapy unless it gets really painful. I have been worrying about this for over a year now and not sure where to start. If anyone with a similar experience can offer any advice, that would be wonderful xx
Hi , a warm welcome to the forum, congrats on being generally so well post all that treatment, but sorry you find yourself here with treatment related problems. I haven’t had reconstruction so haven’t any experience of capsular contracture but there is bound to be someone here who has. I’ve definitely seen it crop up in posts during my 2 years here and will dredge my memory. You could also try a search using the icon in the green band at the top of the page. I’ll have a look but am not very techie and don’t usually manage to copy links.
In the meantime, sending love and a big virtual hug your way. I’m sure someone with some experience of this will pop in soon. HFxx
Hi again , I tried a quick search and there’s a thread re capsular contracture with a reply from a few months ago from so I’m tagging her. Hopefully she’ll see this and respond - hope you don’t mind ! I don’t know how to link you to the thread but I just searched in the Breast Cancer Forum and it popped up. HFxx
Hi
Just popping on a link to the thread HappyFeet1 mentioned in case you haven't found it.
I know this has come up a few times after the years. I know now is not the time to be having surgery for anything non life-threatening but once the pandemic is over, absolutely have another word with your surgeon. You had treatment round about the same time as me and I know how hard it is to accept your new body. I didn't have reconstruction but it was a hard decision and I still question my choices (I don't regret them, but sometimes I just don't love my body and I was never that concerned about looks before cancer) The emotional journey is long sometimes and it might be worth seeking out some counselling if you feel you need it, but ultimately you were given immediate recon before radiotherapy even though they knew there was a chance this would happen, so it's only fair they put that right if you decide it's what you want.
R
Hi
Just popping on a link to the thread HappyFeet1 mentioned in case you haven't found it.
I know this has come up a few times after the years. I know now is not the time to be having surgery for anything non life-threatening but once the pandemic is over, absolutely have another word with your surgeon. You had treatment round about the same time as me and I know how hard it is to accept your new body. I didn't have reconstruction but it was a hard decision and I still question my choices (I don't regret them, but sometimes I just don't love my body and I was never that concerned about looks before cancer) The emotional journey is long sometimes and it might be worth seeking out some counselling if you feel you need it, but ultimately you were given immediate recon before radiotherapy even though they knew there was a chance this would happen, so it's only fair they put that right if you decide it's what you want.
R
Thanks so much for your reply - I will definitely seek out some counselling as I think I've underestimated the toll this all takes on our emotions - never something I've had to work on before, so I've been very lucky. But thanks, it's really helpful to see it written down what I've been thinking, and good advice. Xx
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