Hello

FormerMember
FormerMember
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Got told dcis on 4th I'm now getting mastectomy and lymph node removal just wandering could it have spread or am I just being paranoid it's just in the past few weeks till now its gone from part removal to all and lym nodes

  • Hello, love the user name.  I had DCIS in 2015 and had lumpectomy followed by radiotherapy.  I had two small areas 11mm & 5mm.  Only the 11mm had DCIS the other area was benign.  

    I assume they are doing a mastectomy due to area of DCIS?

  • FormerMember
    FormerMember in reply to Grogg

    Yes I think so dnt even think I know sizes an stuff think lump bout 5cm 

  • Hi

    Welcome to the online community, though sorry you find yourself here. 

    It's a shock, isn't it when they change treatment plans. I think the best thing to do would be to contact your breast clinic for a chat - do you have a Breast Cancer Nurse or keyworker? You should be able to have a chat with them if you are unsure or need answers. We all tend to go blank when we have the results appointments and then get home and realise we have a million questions. You might want to keep a notebook or list of your questions to go through next time you have a chance - it can help remind you in a stressful situation.

    Another thing you could try is to post in our Ask a Nurse section - they are really helpful and should be able to give you some answers although, obviously they don't know your personal case.

    Hope your surgery goes well and we are always here if you need us - we do help, support, jokes etc - whatever you need!

    R