Hello, I am 64 years old and I had a mastectomy with immediate reconstruction with an implant 6 weeks ago. I was diagnosed first with DCIS and told that I would not need any further treatment after the operation. I was offered a mastectomy because removing the cancer would have left me with a deformed breast. It was very difficult to accept that "treatment". I felt that I was going to be mutilated and that the mastectomy was the baddie and not the cancer. Honestly, I did not know if I would have the strength to go through the operation and I even felt like going to drown myself in the sea. The future loss of my breast re-activated my grief for the loss of my son, 4 years ago and suddenly, I felt totally overwhelmed and unable to cope with my situation. I had to dig very deep inside of me to find the courage to face my situation. (I was hoping to not wake up after the operation). I meditate regularly and I think this has saved me from myself, as well as the support from my family and friends. My work has been very supportive too.
I had finally chosen to have an autologous reconstruction (using my own tissues) and I met the surgeon twice (once virtually and then face to face) but unfortunately I am too slim and I had to go through the whole process again: She had convinced me that the reconstruction is "the cherry on the cake". I had considered going flat because I had been online to look at reconstructions and all I could find were horror stories. I felt like I was going to be a female Frankenstein. So I had to meet another set of surgeons and I had to learn to trust them by seeing them twice too and asking plenty of questions in between. I was finally convinced that I would be in good hands and I am glad with the result. I don't have a nipple but it does not look horrible at all and although my right breast is droopy for now, it will be symmetrised later on, once the new breast has finally settled.
Unfortunately, since the reconstruction, I have been dealt with 2 further blows. The first one is that out of the 2 lymphatique nodes which were removed at the time of the operation, the first one was found cancerous and I was told that I would need radiotherapy. Then, when I met the oncologist, he told me that the tumour had not been tested for HER2. So it was tested and found out to be HER2 positive. I have been strongly recommended to have chemotherapy with antibodies for 6 cycles (one every 3 weeks) and then antibodies only for up to a year. This was a terrible blow and I am having to dig deep again to accept this treatment (I know I don't have to, nobody will force me). I like to go alternative and never takes medications and I must say that I am absolutely terrified of the possible side-effects of the drugs on my body. I am wondering "is it worth it?"
I know this is not the right attitude but again, I don't feel ill at all and the treatment feels like a punishment rather than a blessing. I am trying hard to change the way I feel about it. I will start chemo on the 8th January. Before the operation, I had managed to find peace and enjoyed my few days off and prepared myself well. I surprised myself by not running away from the hospital. Now I need to do the same before the chemo starts and I would welcome any tips, words of encouragement, etc...
Sorry for this long post, it helps me to share my heart out. Thanks for reading.
Hi and a very warm welcome to the site. Well done for getting this far through your treatment, especially with all the to and fro ing re the reconstruction. I’m so sorry too to hear about your son, to say that you’ve had a difficult few years is a total under statement.
Regarding the nasty surprise of finding out that you now need chemo, I can’t help from my own experience but lots of folk here have come through it. You could post a specific question in the Questions about Treatments section with HER2 and chemo in the title to attract the attention of those who’ve been there.
Also, there’s a monthly chemo thread in that section; if I was better at this I’d include a link.
Wishinv you well and sending love and a big virtual hug, HFxx
Thank you so much HappyFeet1. I already feel uplifted by your welcome and answer. The support of peers is so important to me. I will follow-up your suggestions te questions about treatment. Take good care of yourself too and a big virtual hug to you too xx
Thank you Laws69. I feel for you. I hope you are able to share your fears? Nothing helps me more than sharing with peers. Take care xxx
Oh was a dreadful time you've had. I'm so sorry for the loss of your son and then having to go through this and having your treatment plan changed.
On the positive side your restruction has gone well and they have been thorough in your care. I didn't require chemo (click on my name and you can read my bio) but I did have 15 sessions of radiotherapy. Radiotherapy is an easy treatment. My only side effect was tiredness and a bit of skin breakdown underneath the breast. Aside from that it was a bit hot! I used Aloe Vera gel straight from fridge on it and within a few months the skin was back to normal.
There is a lovely Awake thread if ever you just fancy a chat. It's been going over 4 years so I suggest you jump to end and just say Hi and you'll have a very warm welcome. The chat there is about life's ups and downs, annoyinHg things/people, the weather etc.
You should also join the monthly chemo thread here
Hi Shanty, I am so sorry you are in the situation you are in and feeling how you are but please keep strong and push through this.
I am like you in that I avoid conventional medicines as much as possible, to the point that I trained as a homeopath years ago so that I could treat myself and my family. And now like you I find myself in a situation where i may need chemo and where I will need radiation and tamoxifen or something similar.
My way of dealing with this will be to take homeopathic remedies to counter the adverse effects. But even without homeopathy lots of people seem to recover from the side effects of any meds and they go back to leading fit and very active lives. I think some continue to play sports and exercise to some extent even through their treatment.
So my advice would be not to worry about the treatment or the medication because your body will recover from it. We and our bodies are stronger than we think.
There is a great thread called AWAKE with lots of ladies who have been through all this and who can probably offer you better advice. I was only diagnosed a couple of weeks ago.
This link will hopefully take you to the AWAKE thread someone is usually on there in the early hours too if you ever can't sleep and want to talk to someone. https://community.macmillan.org.uk/cancer_types/breast-cancer-forum
Dearest ,
We are all here for you if you need us, this future is a strange one to say the least.... for now we can work on getting by 'day by day' - it's the only way.
Remember, you are not alone
Thinking of you and sending you a safe, virtual hug xx
Hey GodWilling, you do realise what you just said, we'll all be asking for your help now with all our aches and pains and aliments
- we'll be opening up your open page on "Homeopathic Advice and Tips" << its has a good ring to this.
, pop onto the Awake thread the groups is great and the information, advice, support comfort gain in there is brilliant - only one condition.... it does help if you are a little loopy - its probably through all the medication we've had. Seriously thought, you will get through this, you are still in shock that you've got onto the Rollercoaster ride that you never even brought a ticket for.... you will get thought this you xx
Haha yes I realised. Very happy to offer homeopathic advice to anyone interested. Am always careful not to push my beliefs onto people, well at least until I know them a bit better (just joking). Also I've been trying to get myself in the right frame of mind where I am able to focus on something other than my breast cancer. I'm going to have a virtual appointment with my own homeopath on Monday as it's hard to treat yourself. We really need to try and get to bed. I'm going to finish my tea and try and sleep. Hope you get to bed soon. xx
Grogg Thank you very much Carol for your kind reply. The information about the cold Aloe Vera gel is very useful in case I would need radiotherapy in the future and about the other threads too. I have started to feel great comfort for joining the forums. There is nothing like sharing with peers. I have been very open about my situation with my family and close friends from the beginning but it is not the same. My diagnosis and treatment trigger their own fears for some of them. The calmer and more informed I become about all this, the more I am able to reassure them.
I have found a great list of what to have handy while receiving chemotherapy on the chemo thread and I will make sure to have everything I may need before I start treatment on the 8th January. I have come across Iscador made of Mistletoe as a complementary medicine to help alleviate the possible side-effects of chemo and radiotherapy and I have started to take it. It is fairly well used on the continent, less here but it can be prescribed privately or on the NHS depending on where you live. It is not expensive. My oncologist told me I can take this while receiving chemo without any problems.
I am very happy for you that you are 5 year NEDDY XX
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