Hello, I’m so glad I found this forum. I had my biopsies done on Friday and have been in a tizz since. Hoping to have results late on Christmas Eve...yo ho ho Merry Christmas!! My consultant thinks it’s a cancer, obv can’t confirm till results are back. I have 2 kids aged 11 and 13, separated from their dad though we are friends. He was diagnosed with stage 4 lymphoma a few months ago so it’s all a bit pants. I am panicking like crazy and I’m normally very pragmatic - my panic is over the children and 2 parents with the big C. I also have a stiff neck and terrible brain fog so of course I’m convincing myself that they are entirely related. I’m blethering on but it’s good to write this down. I hope all are ok for me to share my ramblings xx
Hi there ,
Crikey, you won't forget this Christmas, you have quite a lot going on...
Good you're here, you'll find tonnes of great support and practical advice, basically whatever you need and lots of others going through the same as you emotionally and physically. With all that is happening you are allowed to be in a tizz so tizz away - its perfectly understandable and rambling is fine with this group (look at some of my previous posts if you want to see rambles).
Never a good time to get results but Christmas Eve does seem particularly brutal, especially with everything else that's going on this year (which has probably and quite rightly paled into insignificance for you). On the plus side you know when you'll get the results so won't be worrying about that particular aspect over Christmas and are already managing expectations based on what your consultant has told you...worth mentioning that there are different types of breast cancer, each with their own nuances/treatments/risk so (and I know it may be easier said than done) try and be positive. There's lots of us who've been through it and have come out the other side wiser, stronger and ready to take on the world and hopefully you'll roll up your sleeves, get on with it and do the same. And I hope your children are a chip off the old block and can do the same.
Good luck for Thursday, let us know how you get on.
Sam
Hi YJjJ53 - I might have to abbreviate this to just Y next time
I got my biopsy results with the bad news a couple of days ago so I'm going through some of the emotions you are. I am not separated and my children are 21 and 22 but they will be devastated when I tell them. I have been in pieces trying to get through the waiting and like you I found this forum very early on and it has been fantastic. You should join the AWAKE group it is the best. Lots of us and different stages chatting at all hours. So far I have mostly moaned too and no one minds because they've all been there. Apparently gets easier once we get our treatment plan. I'm in for my MRI tomorrow and then results on Tuesday. I am petrified incase it's anywhere else in my body so like you just waiting and trying to cope. Look for us on AWAKE thread you'll be glad you did.
Hello. Welcome to the group- sending you big virtual hugs. The waiting for the results is certainly the worst part I think . but soon it will be Thursday and you will be told the results and hopefully a treatment plan that you can work with. Of course your Consultant may be wrong and you don't have breast cancer, but that was not my experience at the beginning of the lock down.I got " in a tizz " too, but now looking back it was pointless because the diagnosis was going to be what it was and my meither wasn't going to change it. Try and distract yourself a little- maybe look at some of the other themes on here - I particularly recommend you take a look at the AWAKE thread - plenty of advice on there from those who have been where you are just now and fully understand how you are feeling at the moment.You will be able to join in with the laughter (yes really) and be serious if you wish. It is there 24/7 to help and support. Please do not be tempted to look on Dr. Google - he is often wrong or just way out of date. The other thing I would say is that your team will explain things to you on Thursday but I found a notebook to jot down the meanings of the terms they use and your treatment plan /dates and times. I hope that you will be able to take someone with you for this meeting,a second pair of ears will be an asset.The breast care nurse will probably explain things to you after the consultant has left, but do go with any questions that you want to ask written down to remind you. Wishing you good luck for Thursday and do let us know how you get on. xxx
Hi.. thanks so much for your reply. I seem to have a got a little grip of myself today so I’m not a puddle on the floor feeling all PLOM... well not all the time!! Notebook is a great idea thank you. I agree that it is what it is, just feels a bit out of my control, I’m claustrophobic and it oddly feels similar. Thank you and will check back in I’m sure before d day xx
Hi x Y is fine I use it all the time and at the moment why, why why too!! It’s all a bit rubbish isn’t it, I’m sorry you are going thru the same. I heard about it feeling easier with a plan, I gues it feels right now like we are just hanging around whilst this little demon carries on merrily in our boobs. And, with the bloody bank hols (Xmas some said it’s Xmas!!) coming up it seems like more delay for frivolity’s sake andI’m not in a frivolous mood ... I’m being a grumpy sad cow who thinks an early demise is literally around the corner. It’s prob normal... or I hope so!! It’s so nice to chat to others in the same poo situation. When are you getting your plan xx
Hi x thanks for replying. I’m glad I’m not a solo tizzer... my tizzies have been rather grand and I’m normally rational...ish. I’m hopeful for sleeve rolling and punching this away, I think initial shock and anger and sulkiness is giving way to a slightly less terrified roller coaster. I can’t change it, we are in the hands of science and chemistry now and need to trust the great work the clever folk do. Impatient to get going as I’m sure everyone on here is. I might look up some of your ramblings!! How did you get on, where are you up to? X
See I told you... nuts.. replied twice. Well 3 times now
You still have your sense of humour at least. Why, bloody why indeed, but crap happens to us all and this is our lot at the moment. I don't have my plan yet, I will probably know on Tuesday when I get the MRI results. The waiting each time is truly awful. My fear is the same as yours and is probably the same for everyone at some stage, that we won't make it through this. But apparently breast cancer has a high success rate so I'm trying to hang onto that. Reading people's bios helps, some have really been through it and are still here fighting or now cancer free. I have been a very sad, scared and needy when usually I am the opposite. I just hate the thought of what this will do to my husband and kids otherwise I would be much more ok with it. So I've been sad and grumpy too but trying to hide it from kids who don't know and from my husband who does. until you get your results back you don't know what it is and could be nothing - this was the case for a friend of mine a while back. Trying to keep busy is the best thing and just keep chasing to people on this site - this is what has been helping me. Definitely go to the AWAKE thread, lots of people on it at all hours and someone always replies.
Hi GW...just found and scrolled through AWAKE, will stay on there too. You sound v similar to me regards the sadness and panic, I’m sure it’s very normal and I’m sure it gets easier as we get used tthe news. Even if we find a lump it must still be a shock to the system. I’ve kicked back at my mum and best friend for saying it will be okay, I know they’re trying to ease the stress and I guess ty don’t know what to say otherwise! I think you’re just a week or so ahead of me in the process as well as u have your biopsy results. I suggested a blindfold might be good for biopsies... take one for your marker!! What the hell is a marker.... so much to learn hey. I agree re kids, age is irrelevant though mine are dealing with their dads C and probs have to deal with mine too. On the upside the pic of my boobs that my consultant drew was very complimentary (aside from the big black line through half of my left boob). Should have asked for a copy really
stay strong and positive for first steps onto journey tomo and keep in touch xx
It's hard for friends and family to know what to say especially as they don't want it to be the case. I find it hard to know what to say to people on this site. The best you can do is say sorry and share experiences. Glad you found AWAKE, a lot of them or maybe all of them are further ahead so they know a lot and are past the constant fear and sadness stage. We will get there too.
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