Hi, I had my operations in March and April and have been suffering with Lymphodema to the breast since, I thought I was coping well but sometimes I don’t, and do not want to worry my husband with my fears and thoughts, so decided to join in the hope I won’t feel so scared and sad for the future.
I believed the Lymphodema would improve in time but I was recently advised that it never goes away you just have to learn to deal with it, will I need to stay completely out of the sun
and the garden because of the risk of insect bites ?
xx
Hiya Baileylady, IV read about hot & cold showers to gently jump start the Lymphatic system to help shift the Lymphedema. I am also doing rebound exercise on a mini trampolene. Even 10 minutes a day. Struggling to shift any weight, which doesn't help. I love walking, weather not good today, but in isolation for biopsy tomorrow, PETscan showed new activity in swollen Lymphenode, deeper in chest area, near collar bone. All this waiting & not knowing what's going on, draining to say the least. It is so frustrating that the hospital Drs/nurses & own Dr don't link notes, having to explain everything all the time, ignore Dr & ring breast nurses yourself, or look online at Lymphatic Drainage Massage. I use intensive moisturiser after massaging area, used coconut oil too. The massage technique is a bit like gently stretching skin with gentle pressure to area, move Lymphe fluid to area where nodes are working. I think I'm doing ok, but rang Lymphe nurses for face to face appt, which they are happy to do. Keep asking, you'll get there, the physical impact is enough to deal with, without the anxiety, worry etc. Take care xxxx
Thanks for your advice Tess1965.
Hmmm, don’t think I fancy a cold shower though LOL! Will try the massage with oil and will keep asking for an appointment.
So sorry you are having to have a biopsy and going through the agonising wait for results again. The uncertainty is really hard on us.
keep strong! I will keep my fingers crossed that you get good news. Take care x
Lol, IV very rarely tried the cold shower thing too, results from biopsy on the 25th Feb, birthday on the 28th, so hoping for good news & extra celebrations. Grand children & daughters my saviours atm. Keep looking for alternative feel good therapies, baking a ginger cake today, music on, it's good to fill our heads with happy thoughts. Visiting mum in Dementia home yesterday, gave her a pamper session, nails done & hand massage. She's still got her cheery Irish sense of humour, made me laugh so much. I still count myself lucky, simple things in life keeping us all sane I think. Time for a hot cuppa & ginger cake with Madagascan vanilla custard, what the hell. Comfort food high on my list today, good luck to all, fingers crossed for some good news, sending you all love & best wishes, xxxx
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