To all ladies on Letrozole.......

FormerMember
FormerMember
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Hi girls. I have been taking Letrozole for almost 2 years now. I have developed a love/hate with this drug. I love how it keeps me safe, but hate the sore joints it gives me. 

I have tamed the side effects with cod liver oil and glucosamine.

I recently bought my usual cod liver oil supplements from Holland and Barrett. I trust their quality. This time their best offer was cod liver oil with calcium. I thought I would give it a try..........IT IS MIRACULOUS!! The pain in my joints has stopped altogether!!

They should prescribe on the NHS!!

Hope this helps all you sufferers of side effects.

Love J xx

  • With respect to magnesium, apparently you shouldn't take it if you're having ibandronic acid (Iasibon). 

    1. Sophie X

    "Experience is the hardest kind of teacher. It gives you the test first, and the lesson afterward."

    - Oscar Wilde

  • is it ok to take magnesium tablets with lexatrole (breast cancer)

    thanks  pam

  • hi I was given glenmark as my first pack by the hospital. I had no problems with them. Them me pharmacists said they couldn't get that make as they wernt on the list! a friend is a pharmacist and told me to ask for Teva. I have had no problems with this make either. Strangely I went to collect my last prescription and found it was Glenmark again. At least I know I'm ok with both. 

    The trick to walking over hot coals, is courage. X
  • I am interested in your question , I have read the magnesium is good for a lot of things and I believe one is helping improve the memory and helping with better quality of sleep.

    I to wonder if it is okay to take this, that it wouldn't effect the letrozole and our hormones?

    Any thoughts ladies xxx

    I'm hoping this makes sense - only my mind says one thing and my fingers type whatever they like x
  • hello

    re  magnesium

    I should have said that I had a sample  (week supply)   off   "Menopause support" tablets from  "A. Vogel" company. 

    on looking at the ingredients for above, it say  405 mg of tri-magnesium dicitrate anhydrous.     42mg of soy beean extract,   hibiscus cellulose      magnesium stearate  !!!!

    so, I have since emailed this company asking what they thought of these - what I think is mainly,  magnesium content,   if they are suitable to take with Letrozole.    

    the answer was  "no"  don't take them  because these tablets are to try and sort out menopause problems.

    so, am confused if I can take "ordinary magnesium tablets".     probably better to keep away from such things !!!!

    I will attempt to email manufacturers of Letrozole and ask their opinion.

    just wondering what other ladies thought.

    pam

  • FormerMember
    FormerMember in reply to christinediane

    Hi, just read your post and I'm thinking that the manufacturers are advising against their supplement because it contains soy rather than the magnesium and those of us with oestrogen positive breast cancer are meant to avoid this. Possibly magnesium on its own would be ok 

  • FormerMember
    FormerMember in reply to FormerMember

    It is difficult . The doctor is sending different ones just now and I'm finding out which suits me best . I notice they have short dates so I presume the chemist is using up stock . Crescent has magnesium but I'll check the next one .we must avoid soy . It's so difficult . I'll keep in touch .

  • FormerMember
    FormerMember in reply to FormerMember

    I've been taking letrozole since May 2015. In that time I've had every brand on the market with very few side effects. I know I've been very, very lucky and am in a very small minority. 

  • FormerMember
    FormerMember in reply to FormerMember

    you may or may not be in a minority.  I’m like you and I imagine there are many of us.  We don’t have problems so we don’t have any need to comment on these threads.  The side effect rates for these drugs are all in the public domain and we have a well established national system of reporting.  People may well be sensitive to a few excipients like tartrazine or lactose and again, the ingredients of each generic brand are in the public domain.  Most of the side effects mentioned here are associated with increasing lack of oestrogen.

  • FormerMember
    FormerMember in reply to FormerMember

    The reason I comment is because we hear all the negative effects of the meds we take and very little of anything else. As a result ladies starting on meds think it's all bad.  We just need a more  balanced view