Starting Letrozole

If your hospital subscribes to the ROSETA trial there is a possibility of signing up, there are different levels to help you with those AI drugs. Just ask when you’re there. It’s being run by Leeds university, I’ve been on it and, believe me, it does help. I’m over 18 months in on my second bout of AI meds, this time is Exemestane, as I had a recurrence. 

Yes, the joint pains are probably the worst but if you think about it, you’ve already been through a huge amount, this is just a bit more! Ive done 5 years already, a year off and another year and a half. I think you could say that oestrogen is the WD-40 of joints. But keeping mobile is the best way of dealing with it. I walk a minimum of a mile each day (usually more) and also do ankle exercises each night at bedtime. (And I’m 80 now or 40-again which sounds better, haha!)

I’m sorry I’ve just rambled really but if the specialists feel this is the right way forward for you, then why would you not take their advice? 

Thanks Moomy, that’s a really helpful reply. I will look into the Roseta trial. I am an active person so I will make sure I keep getting my walking boots on. I read that 150 mins weekly of moderate exercise is hugely beneficial for us BC peeps so will try to tick that box. I will definitely be starting my Letrozole as advised and hope for the best. Wishing you all the best and hoping you are doing well post recurrence. 

Have to say I did research as to brands and insisted I kept to Acord as I felt it was closest to the original (Femara) drug. It will help if your GP writes ‘please supply …. brand’ on your repeats. 

Hugs xxx

Hi I started letrozole last May , same diagnosis and treatment as you. I have noticed joint discomfort especially in my knees , so I’ve had acupuncture (curtsey of nhs) currently on a 12 week gym programme specifically to strengthen leg muscles , I walk as much as possible too. But what I’ve noticed helps most of all is daily shots of ginger and turmeric with black pepper .