Hi all,
This is my first post — I’m new here and haven’t had an official diagnosis yet, so I hope it’s okay to reach out. I just felt like this would be the best place to ask for some advice and hear from people who understand
I’m 35, and over the last few months I’ve noticed some changes in my right breast that have been worrying me. I found a hard, large lump at the side of the breast, along with dimpling, puckering, changes in shape/size, and a rash that wouldn’t clear up. I went to the GP and was referred to the hospital.
At my appointment, they reassured me that the lump might be related to weight loss and told me not to worry. However, the day before the hospital visit, my lymph nodes in my armpits became swollen, sore, and inflamed. They did an ultrasound (which didn’t show anything suspicious) but took biopsies from the lumps in my armpits.
I left feeling relatively reassured, but then I got a call on Friday saying the lymph node biopsies showed signs of infection — but they also noticed some other changes they’d like to investigate further. I’ve now been booked in for surgery on Tuesday to have some lymph nodes removed for further testing. I was told they wouldn’t do a mammogram because I’m under 40.
I’m trying really hard not to spiral or assume the worst, but I do have a lot of symptoms that seem to point towards breast cancer, and I’d rather be prepared while also hoping for the best.
Has anyone had a similar experience — with lymph nodes or breast changes like this? I’d love to hear what to expect from the upcoming appointment, and how others have coped emotionally during this in-between stage.
You are all so inspirational, I am in awe at your strengths. Thank you all so much for taking your time to answer me. Wishing you all the best and a full recovery x️
Hi Jobby
It’s such a worrying time waiting for upcoming surgery and results and, although my experience wasn’t the same as yours, I can empathise with how you are feeling.
I just wanted to respond to your query about how to cope emotionally during this time. The two things I would recommend are a journal to write down and get out your worries and feelings, and also exercise. I hope that it doesn’t turn out to be cancer for you, but if it is then exercise is so helpful both emotionally and for physical recovery. It’s been my distraction while going through treatment and now my focus for aiming for a healthy future.
Sending love and best of luck with everything. x
Hi there, I'm one of the champions here in this group and I wanted to welcome you to the forum, I hope you find it a supportive and friendly place. I think most people find the stage of waiting for confirmation (one way or the other) to be the most difficult. Personally I worked hard to keep myself busy and distracted so I didn't have time to think. It's hard and does get much easier when you have the results, even if you do need further treatment. Best wishes
Hello Eebee,
Thank you for taking time out to reply to me, I really appreciate it
I'm really sorry for what you are going through, I wish cancer didn't exist honestly. It's just terrible.
These are great tips, thanks so much. I will definitely give those a bash. Hopefully get a good sleep tonight and thankfully the appointment is at 9am tomorrow so I won't have to wait anxiously all day for it.
If you ever need someone to talk to message me anytime x
Hi Lee
Thank you for writing back to me, I really appreciate it
Gosh honestly I have anxiety normally but this is something else. I'm exhausted from it. I can only imagine how you and everyone else must be feeling, I am so sorry you's are going through this.
No they only took a biopsy from my armpits, two or three I think which I thought was strange that they didn't take one from the breast and if it wasn't for them being sore, inflammed and lumpy I'm not sure they would have. To be honest I felt a bit dismissed as if I was being a bit dramatic over nothing. Don't get me wrong they were lovely but it was kind of just "ah what you like, you're fine stop it" kind of way towards me. Or at least that's how I felt but saying that I am super sensitive at the moment.
I'm nervous about tomorrow though not because of the situation but also because I'm really squeamish, I don't actually know what to expect. I have read conflicting things online something's saying it takes roughly 30-40 minutes and I'm sitting thinking how am I going to get through it without fainting. I was thinking even if I bring headphones and listen to music or something during it that may help? But would that be rude?
I also have it in my head that they did find out it was cancer but they don't want to tell me over the phone so are doing this to call me back in/find out what stage it is. But again is that just my anxiety getting the better of me to you think? Would they tell someone over the phone? X
Hi Irish girl
Your message has really touched me, thank you so so much. Honestly cannot thank you enough for being so caring and kind. That's meant the world to me.
I have tried so hard all weekend to keep busy but have found myself just staring struggling to focus on anything other than that and I've had pretty much no energy at all.
Same goes for you, feel free to message me any time and thank you again for contacting x
Hi
i just wanted to hop on to say that I was given my cancer diagnosis over the phone.
also I have a friend who works in mental health who told me ‘what ifs aren’t facts, stick to the facts’ I found it helpful when my imagination starts getting the better of me.
Wishing you all the best
Hi Sunflowers2, I also got told I had secondary breast cancer over the phone. Good advice about stick to the facts. I will try and follow that good advice. Good luck to everyone .
Lee x
Hi I’m sorry that you are going through this. The waiting bit is the worse. I had similar changes with heaviness, swelling and general hardness in my left breast. I’m glad they are looking into this further for you. Mine didn’t present as a typical lump scenario. If you aren’t happy just keep pushing. Good luck
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