Feeling overwhelmed

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Hello everyone, I have just started weekly TCHP for triple positive breast cancer. I am trying hard to just take a week at a time but sometimes can’t help but see the long road ahead. My treatment plan is 12-18 weeks of TCHP, lumpectomy, radiotherapy and, depending on response, either Phesgo for a year (from start of treatment) or Kadcyla for 42 weeks from end of TCHP. That’s 12-15 months of treatment. If anyone on here has any experience of this, can you advise how you found recovery from surgery and the radiotherapy in comparison to the chemo. Also I’d be interested to know whether the 3 weekly Phesgo or Kadcyla is slightly easier to cope with than the TCHP? I am hoping things might get slightly easier and that the worst comes first. Having said that please be honest so I can manage my expectations. I am a very positive person but feeling very overwhelmed by the big picture at the moment. It would be helpful to understand what I might expect. Thank you. 

  • Hi there, I had different chemo to you, but I have to say, surgery and radiotherapy were much easier to deal with than the chemo.  I also had phesgo, and had zero side effects from this.

    I understand the road seems very long, but perhaps try and take it one step at a time and focus on each element of the treatment as it comes. I certainly found that easiest. Best wishes 

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  • Thank you for your helpful advice and encouragement. Good to know you found surgery and radiotherapy a little easier. As you say I just need to look one step ahead, I’m going to need to learn patience! Hope everything is going well with you post-treatment. 

  • Radiotherapy the gift that keeps on giving. I'm 19 years down the line from the first time. Backing the car out of the drive is like being stabbed in the heart. This is not short term and perhaps it is time the professionals were more honest. I will never forget being told" You are alive, if you get pain just massage the area"  I didn't take that advice I didn't think it was an appropriate thing to do in front of a class of 30 children. However I have had those 19 years. All those holidays, grandchildren and glasses of wine. I think having BC might be like being an alcoholic each day alive is a positive. However we are never the same again either mentally of physically. Please don't get lost in the drugs and the technicalities. This is something we survive and learn from. 

    This may sound a bit brutal but I'm starting this journey for the third time and I'm terrified

    Three times! What did I do?

  • So sorry to hear you are starting the journey for the third time. That is brutal and utterly unfair. This is my second time round with two different cancers. I agree with you that life and its wonders are all the more precious once you have had cancer in your life. It brings in to sharp focus all the important things. I too have been so fortunate to see both my children grow over the last 30 years thanks to successful treatment first time round and I look forward to celebrating many more milestones in years to come once I am at the other side of this diagnosis. Sending you every best wish for what’s ahead. It’s awful, but we have done this before and we will do it again. We have no choice and we can do it. Stay strong.