Size of lump

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Hi everyone 

I just joined yesterday after finding out I have IDC grade 3, 2 weeks ago. I should find out tomorrow if its HER2 positive or not and also MRI results to see if there is anything else lurking.

I must say the last 2 weeks have been hell on earth waiting and wondering and thinking what if its spread to.organs etc....I have noticed every little ache and pain and I think of the pains have probably been brought on by stress...is that even a thing?

My consultant is estimating the size of the lump to be 3.8cm and I just wondered is that normal? He said it wasn't big but I am.guessing it's not that small either. I feel scared to touch it in case it feels bigger. 

Hopefully I will.find out a treatment plan tomorrow and I can wrap up work and get on with it....from what people.are.saying it feels a bit better when you know next steps...although I am fully prepared for curve balls the whole way though. 

It's.so nice to be connected on here as I don't really.know anyone going through this.....

  • Hi  

    It really is the toughest part waiting to find out results. We start to question everything and naturally jump to the worst case scenarios. It’s right, though, what people are saying - I guarantee you will feel better when you know what is happening and when. 

    I just wanted to reassure you that feeling aches and pains is totally normal. When I was diagnosed last year I had pains in my shoulder, arm and back and convinced myself all kinds of things. Reality for me was that it hadn’t spread and all of these pains disappeared after surgery. I was also recently recalled from my first annual mammogram. I experienced tenderness in my ribs yet it turned out what they wanted to look at again wasn’t even on that side! Don’t ignore them, but remember the mind can do funny things when we are under stress. 

    Best of luck with everything and feel free to ask any questions. x 

  • Hi ACharge80 I just wanted to wish you luck with your appointment today.  Fingers crossed that it is positive news.  You will definitely feel better when you have your treatment plan in place and then just get on with it.  Good luck and let us know how you get on.

    Lee x

  • My MRI scan didn't bring up anything else just the lump we know about which is 3.5cm. The HER2 was inconclusive so having to wait another 1 to 2 weeks for my treatment plan

  • Hi ACharge80 oh no another week wait.  The positive news is that the MRI didn't bring up any new surprises.   My tumor was same size as yours 3.8cm and removed successfully with surgery.  Mine was ER+ and HER2-.   Hope the wait goes quickly for you and you have a treatment plan in place soon.  Hugs

    Lee x

  • Hi  

    Did you have a lumpectomy with that size tumor? My consultant eluded to that last time I saw him. What does ER+ mean. I hope.mine is HER2 negative too but it will be what it will be. 

  • Hi ACharge80 yes I a had a lumpectomy.  ER + is estrogen positive which is a hormone.  HER2 is a protein.  I dont know what the difference is really other than that they have different treatments for them.  My friend had HER2 positive and had the same chemo as me but medication afterwards was different.  Hope this week wait goes quickly for you. Lee x 

  • Hi Lee

    It was her2 negative and I had my lumpectomy yesterday and sentinel lymph node removed (not sure if he took more - he said he would try and take a few if they were in a cluster to potentially save going back in). Do you think the size of the tumour is linked with the likeihood of it spreading to lymph nodes?  Mine was grade 3.  

    Were your lymph nodes effected lee?

    My results are due 16th July. 

    Andrea

  • Hi Andrea,  I read your reassuring post on another thread to another lady.  That is so nice of you to do and share your experience of yesterday.  I don't know about the size of the tumor being linked to the likelihood of it spreading to your lymph nodes.  I think they removed three or four of mine and I had cancer in one of them.  Now you have the horrible bit of being in the waiting room again until 16 July.  Are you having chemo and then radiotherapy or do you have to wait to find out?  I found the worse bit after the lumpectomy was under my arm but it was okay and definitely make sure you do the exercises they give you.  You sound like a very positive person.  Good luck and let me know how you get on 16 July.  I had MRI yesterday and a CT scan today and get results on 23 July so fingers crossed for both of us.  Big hugs.

    Lee x

  • Hi Lee

    I was so worried about the operation but now I realise that I didn't need to be - so thought I may as well try and put people at ease. 

    I read your bio - I am so sorry to hear about the metastasis in your bones.  You said it's treatable so can they potentially keep you going for a very long time? I keep getting arm pains but there are other explanations such as lifting heavy things and typing at my computer for 12 hours a day or driving 5 hours a day - but I have never been so worried. Everytime I get a pain I think it's cancer!

    Yes back in the waiting room. It's not a nice place is it?  I think I am having chemo first, the radio at the end. 

    I cannot believe you went though the operation, chemo and radio and would have thought all ok and good.  Then this happens to you - I don't know what to say I just feel so bad for you. If this originated from the breast cancer did you not have annual follow ups or any checks along the way - did it come back to your breast (same one or different one) before spreading it's so unfair. 

    Andrea 

  • Good morning Andrea.  I am glad you got on okay with your op.  I am sure you will feel better after the 16 when you know your treatment plan.  Yes I had follow up appointments for five years after my breast cancer and regular mammograms.  I had lobular breast cancer which is very sneaky and has more chance of reoccurrence.   Anyway the cancer has not come back in my breast but it has spread the my blood into my bones.  I had a bone biopsy to find out where it had come from and it is from the breast cancer 13 years ago.  I dont know how long they can keep me going for, hopefully for a long time as I have too much wine to drink Grin .  I will be 60 next Sunday so hopefully will celebrate a lot more birthdays to come.    I try and enjoy each day and walking my dogs keeps my pain under control.  Strangely enough sitting around makes it worse.  Anyway I am keeping my fingers crossed for you for the 16.  It is really nice to chat with you.

    Lee x