Hello, I’m reaching out because I’m feeling really overwhelmed and scared.
It’s been a long time since my diagnosis, and I still don’t have a clear plan or timeline for surgery or treatment. I was diagnosed around April 11th with invasive ductal carcinoma grade 2, along with some calcifications and ductal carcinoma in situ. Then, just recently—on May 16th—I had yet another biopsy due to swollen lymph nodes and more masses found in the same breast.
The waiting has been so hard. My first appointment was back on March 23rd, and since then I’ve gone through so many tests—three biopsies, an MRI—and I still don’t fully know what’s next. I understand that doctors need a complete picture before moving forward, but I can’t help feeling like time is passing and the cancer is still there, growing. It terrifies me.
I try to stay strong, hopeful, and resilient. I really do. But this journey is breaking me in ways I didn’t expect. I have moments of positivity, where I try to believe everything will be okay—but most days, I feel lost and cry out of fear and frustration, not knowing what’s coming or when.
Has anyone else gone through months of testing like this? Is it normal to feel this way for so long without clear answers?
Thank you for listening. I just needed to let this out.
Hi Maria E. , sorry you are having such a long wait for tests and results. I think it’s not at all surprising that you are feeling scared and frustrated. Most people here say that the waiting is the worst part of the whole cancer malarkey. You’re in limbo, not knowing exactly what you’re dealing with or what treatments you’re going to face. It’s hard to focus on anything at that stage. You’re right I’m sure, that the medics need all the necessary information before they decide on the best treatment plan for you, and it’s good that they are clearly being very thorough, but that does not make it any less frustrating for you, stuck in this tortuous limbo.
Having been scuttling around this forum for many years now, one thing that does get said fairly regularly is that breast cancers are not usually that fast growing, I think they can be ‘present’ for many many months (or longer) before we even find a lump. So although delays to starting treatments are incredibly frustrating and demoralising, it’s still better to have the correct information to ensure that the treatment plan is appropriate for your particular case. Sending love and a big virtual hug your way, HFxx
Thank you for your response — it truly brings me a sense of calm. First, knowing that I’m not alone, and also understanding that this part of the process is incredibly hard... it’s terrifying to the bone... and deeply frustrating. I’m immensely grateful for your words."
Hi Maria. I do understand how you feel. My daughter first went to the GP in March 2023. She started treatment at the end of July 2023, after seemingly endless tests, scans, appointments and meetings ... and waiting. Nearly two years later, she has just completed - 22 chemo cycles, 3 surgeries and 15 sessions of radiotherapy. Much of the treatment was very tough with unpleasant side effects but she has no regrets. Scans now show 'no cause for concern'.
None of it is easy, but never forget that your medical team want the very best outcome for you. They are skilled, caring and experienced. They see this every day. Your CNS nurses will be there for you, never feel that any question is too trivial to ask. Keep a notebook so that you know what you want to ask at each appointment, it's easy to forget when everything is so overwhelming.
Very best of luck, you'll get through this. Sending love and strength. Xxx
Hi Maria E,
Reading your message truly touched me, and I just want you to know—you are not alone in this. Your words reflect such courage, even though I know you're feeling anything but strong right now. Please believe me when I say that everything you're feeling is completely valid. This journey is incredibly tough, and no one can truly prepare us for the emotional weight of the waiting, the fear, and the uncertainty.
I’ve been walking a very similar path. My first GP appointment was on March 26th, where I was referred to the breast clinic immediately. On April 14th I was diagnosed with lobular breast cancer Grade 2, DCIS and extensive areas of calcifications and since then, it’s been a blur of scans, biopsies, MRI, CT Scan and appointments. Like you, I still don’t have a surgery date. It feels like everything is moving so slowly while the worry just builds up. They’ve started me on hormone therapy, and every time I ask about surgery, my nurse gently reminds me that this is part of the treatment—that they're being thorough and careful. Still, I know how hard it is to wait, and how it feels like time is slipping away.
Please hold on to this: you are doing everything right, even on the days it feels like you’re barely holding it together. The strength it takes to go through this day after day is immense—even if you cry, even if you're scared, you are still showing up, still fighting. That is strength.
This waiting phase doesn't mean you're being forgotten—it means they are taking every step to protect you and make sure the plan they create is the very best one for you. I truly believe that.
You're not broken, even if it feels that way. You are human, and this is one of the hardest things anyone can go through. Please don’t ever feel ashamed for needing support. You deserve to be comforted, heard, and lifted up—especially now.
Sending you all my love and strength.
Whatever cancer throws your way, we’re right there with you.
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