Wanting a mastectomy due to reduce risk of cancer but may be declined

Hi Sarah. Have you talked to your GP? I think the guidelines for high risk include  more than 2 close family BC with no general, but I'm not 100%. I paid privately for genetic testing as the NHS wait was so long, and had my preventative dmx last month. Sending positive vibes to you, lovely xx

Hi, I am trying to find somewhere to do the genetics privately at the moment. I checked NICE and I have found other trusts in the UK that do it so I will take all this to the appointment with the consultant. The nurse said I am classed as 2 but high risk as they both had bilateral. My risk also increases due to starting my periods at 10 and having no children. I am going to speak to my respiratory consultant tomorrow to see if I can get his support and my menopause specialist. How were you after the op? Did your genetics come back positive? Thank you for replying. 

Hi. Yes, I'm BRCA 2. I did mine through Randox, and the results were accepted by the NHS with no issues. I've not got children either. Recovery has been ok. Discomfort in the early weeks, especially with drains in, and now 7 weeks post op I'm still having nerve pain (a bad day today) and have a seroma, still more tired than normal, but I'm back at work tomorrow on a phased return as my job is pretty demanding. For waiting list context, I was priority referred Feb 24, received an appointment for a pre test consultation for December 24! Had my private test July, results August, surgeon appointment November. I'm Coventry and Warwickshire PCT. 

I will have a look at Randox, thank you. I am hoping I can have a good talk with the consultant if my genetics is negative about my concerns. My sister had a mammogram and a month later she found a lump and was diagnosed with stage 3 aggressive cancer. She has had treatment and is okay now but it was scary. I have large breasts so I am worried I will miss something. Good luck with the return to work. I am Nottingham. 

Sorry to hear all your concerns. I didn't have any family link when my ER+ & HER2+ were diagnosed in right breast, but wanted mastectomy Dec 2021. I always do my research and felt this was best option.  Surgeon said no as I had large boobs 40G, had lumpectomy and radiotherapy no nodes involved. In Jun 2023 I found another lymp right on the margin of the previous tumour, was told was scar tissue. I'd had mammogram in Dec 2022 which showed nothing. Fast forward Jan 2024 diagnosed with stage 4 metatastic breast cancer which had spread  causing malignant plural effusion (fluid on lung) on left side and cancer nodules under the skin of original breast. If I could go back I certainly would push for mastectomy.  If you go back years ago only option was mastectomy and i know many of these woman who had no further problems, but that's just my personal opinion. Check things out, talk with doctors and push for whatever you decide is best for you. Xx