Advice on side effects Docetaxel and Phesgo

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Hello 

I was diagnosed in Jan with breast cancer and had my first chemo to start shrinking the tumour last Tues. Docetaxel and Phesgo.

I'm stunned by how quickly I have lost my energy, I have a physical job and am feeling a total lightweight as I cannot even get up and down the stairs at home easily, i felt fine Weds and Thurs but from Friday I've been a wet lettuce!!! 

I know they say we are all different but I wasn't expecting such a swift decline, I'm beating myself up telling myself I'm being a wimp as you hear of these superpeople who continue working and exercising, am I missing something that could help or can I expect days 3-7 to be like this? 

Treatment is every 3 weeks, reduce before surgery. 

Thank-you 

  • Hello,

    I was on EC which I think is kinda the same - I had mine on a Wednesday. Was okay until about the Sunday (just about) and then spent about 5 days in bed with bone pain and fatigue.

    After that, it was like I wasn’t on any treatment at all but I had to remember to be careful and that immune system would be low. 

    Good luck - you will find a way through this that suits you xx 

  • Thanks for this feedback, I just feel I'm being a wimp already!!! Good luck and all the very best in the coming months x 

  • Hi BevF

    I was on Docetaxel and found exactly the same, days 3-7 are hard going (and i think most others would say this too), I was extremely tired, joints aching and nauseous. Please do listen to your body and rest you are certainly not being a wimp!! after day 7 I started to feel normal again and this was pretty much the same for all 6 rounds.

    Best of luck.

    X

  • I had 3 EC and 3 Docetaxel. EC wasn’t too bad, but from day 4 onwards with docetaxel I had problems. It wasn’t so much fatigue, it was all the side effects. Bone pains were from the filgrastim injections for me. I had mouth ulcers, oral thrush, nose bleeds, awful diarrhoea which went on for 12 days, terrible breathlessness and raised heart rate. The oncologist reduced the dose for treatments 5 and 6, which helped a lot. 

  • I’m sorry you had such a bad experience I was reading that to use a soft toothbrush and use a mouthwash from day 1 helps with sore mouth I tend to do this I hope your next round is easier 

  • Hi…I had my final chemo in December, so well over it now thanks. I did actually use a soft toothbrush and gentle toothpaste throughout treatment. I had that many different mouthwashes prescribed I lost count. As a result my teeth were awfully stained and my dentist had a hard job to get them nice and white, but he managed it.

  • Well done I hope you are well now ,so much advice I don’t know which way to turn I need to stop addressing every possible problem before I’ve even encountered it 

  • Thank-you Belle, take care x

  • Wow that's a heck of a lot to deal with, glad they finally resolved it somewhat. Really appreciate the guidance x 

  • Same here . Just on cycle 5 and so pleased consultant reduced dose. Having said that, this time  I took 2 Cocodamol every 6 hrs whether I felt pain or not and it seemed to help sleep too. Last dose I was lying awake ( from steroids) aching all over and feeling a right misery guts. If u r on that heavy dose get a soft toothbrush , eat Greek yoghurt and fresh pineapple, drink liquidised juices of cucumber, celery , carrot , pineapple. I got Bioxtra mouthwash on prescription which is very good. My problem was water and tea tasted so metallic and awful that I couldn’t drink 2 litres to get it flushed out. Finally crawl into bed with hot water bottle and or electric blanket!