Hi,
I was diagnosed at the end of August with bilateral breast cancer - 2 tumours in each breast - 1 DCIS, 1 invasive ductal tubular grade 1 on the right & 1 invasive ductal grade 2 & 1 mixed tubular/lobular on the left. This was all picked up from a routine mammogram and further investigation so came as a bit of a shock! All tumours are oestrogen positive so have been started on letrozole which has horrible side effects and I’m told I will be on it for 5-10 years.
I had breast conserving surgery with lymph node removal in early November which went well and the margins look clear but unfortunately there was cancer in one of the lymph nodes. Have since had a CT scan and am waiting for the results of a Prosigna test to determine whether to do chemotherapy before radiotherapy. I’m told radiotherapy is a definite to both breasts, chest wall and axilla. Results of my CT scan are due this Thursday but oncology appt not til January now.
I realise I have so far been shouldering this on my own. I have a husband and family and have dealt with things really positively for the most part. I have not made use of MacMillan nurses or really spoken to the breast care nurses outside of appointments as I’m worried I’ll sound like I’m being silly and worrying over nothing. To be honest I think I totally underestimated the psychological impact of a cancer diagnoses plus I have suffered from anxiety and depression in the past.To boot I had changed jobs in May this year so all this has happened while still in my probationary period. I think I cover things up too much and then get very upset in private.
Thank you for reading this long post - just felt I need to start reaching out.
Good morning, Strawberrycat
Sorry you have to be here, but welcome. It’s really tough coming to terms with all of this, such a shock and something we always think will happen to someone else. I found the waiting period up to surgery the hardest with various extra tests being needed and surgery being postponed. It was the not knowing and lack of control which threw me. I really struggled and couldn’t manage work and, like you, I was in my probationary period which was a huge extra worry as I was convinced I would be sacked for having too much time off. In reality my employer was incredibly supportive, I hope yours is being so too.
You are not being silly. It’s a massive thing to be diagnosed with cancer and go through treatment. Things which I found helpful was some sessions of MacMillan counselling, keeping a daily journal to get my worries out onto paper and, although I didn’t feel like it at times, doing regular exercise which I’m convinced helped with my physical recovery but also helped hugely with my mental wellbeing.
Keep talking on forums such as this when you need to. People will understand how you feel and you don’t need to carry it all alone. x
Thank you Eebee - it’s good to know that there are others who feel the same things. I really don’t think I’ve engaged enough with all the things that are available - I am definitely going to look at the MacMillan counselling and do write my thoughts and feelings down. You’re absolutely right in that the waiting and lack of control is one of the most difficult things. I will keep talking - thank you for your reply x
Hi StrawberryCat , would echo what Eebee has said. The emotional impact of a cancer diagnosis can be huge, certainly was with me. But like lots of us I was always putting a positive spin on my cancer to family and friends, emphasising that it was relatively small, caught early, very treatable etc etc. But inwardly churning, scared and feeling very lonely. This site has been a huge help to me, a great place for support and shared experiences with people who ‘get it’. I guess that’s why I’m still rattling around here, 6 years later! I eventually made contact with my nearest Maggie’s centre, an hour’s drive away, more than a year after my diagnosis. It was a huge relief to see others in a similar situation face to face. I was able to get 6 weeks of ear acupuncture there to help with the Anastrozole induced hot flushes, and met a couple of lovely ladies who I still meet up with.
Work was a huge source of guilt for me, I was very lucky to have a supportive school but felt horrible about having time off. The MacMillan advisers can help with work related issues as well as emotional, by the way.
Good luck with it all, do keep posting here, there are no silly questions. Sending love and a big virtual hug, HFxx
Hi Strawberry Cat, hang in there. It's a difficult time and though it's tempting to keep strong and hide feelings, it's really good to engage with others who understand. I'm waiting for radiotherapy starting on 18th December and am feeling increasingly tetchy and fed up. I hope it all goes well for you and that you remain kind to yourself as you go through each step. Best wishes.
Thank you HappyFeet1 - I’m just in the process of contacting my nearest Maggie’s centre - it’ll be a good 50 minutes or so for me but I think it will be worth it. It does really help to speak to people who ‘get it’ even though everyone’s journey is different. Thank you for your reply and sending a virtual hug and love back xx
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