Hello,
I have an extreme form of Neuropathy in my surgery site (mastectomy), hands and feet.
I seem to be an anomaly and have yet to speak to anyone that has also suffered.
The medical community don't have the answers so I have decided to reach out to see if I can connect with someone that has.
I would also like to ask if others find the lack of support post chemotherapy regarding your neuropathy as totally lacking?
Where do you go for help? Who has given you the best advice? Were you aware that this could happen pre treatment?
Were you given any advice before you started, things that may help etc?
I feel I have had to navigate this alone. So I would love to hear from any fellow sufferer's on how you manage and to share some of your thoughts. Thank you.
