Please, not again!

  • 10 replies
  • 313 subscribers
  • 460 views

Hi,

I had my mastectomy and axillary node clearance last October, and did chemo, radio and now on abemaciclib and letrozole. I've finally been able to have thyroid surgery for a second primary and and about to have a second thyroid surgery. This isn't the time to feel a new lump! I have had to chase a breast follow up appointment, which I then had to reschedule due to surgery date and they gave me January. Because of the lump, I'm now on a 2 week referral again, with an appointment 4 days after surgery and no idea if I'll be home or not.

I'm obviously scared and not sure if I can do all that chemo again. I haven't worked for over a year and now I don't get paid and don't think I qualify for any benefits. Going back to work isn't going to happen for a while yet.

I'm suddenly feeling a little sorry for myself and raving a bit, but Hubby isn't able to listen to me rant tonight (his brother died suddenly 2 weeks ago) and I needed to say it.

Can someone please tell me to take a breath? 

  • Hi LuckyD I remember you from the forums and sorry to hear what is happening for you right now. You know we are here for you as and when you need us to be.                                                 And BREATHE. Sending some hugs your way for now and speak soon..x

    gail

     
    Community Champion Badge

  • Thank you for replying. I've been lurking in the background.

    I'm feeling a bit less freaked out this morning. 

  • Hi  , this is the place to rant! Not surprising that you feel the need to do so, that’s a whole heap of stuff to deal with. Big deep breaths, come back to rant anytime! Sending love and a big virtual hug your way, HFxx

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
  • Please try not to panic. I found a lump again a few weeks ago and thought the worst. I got back into see the consultant and it turns out it’s a skin cyst, I’ve just got to keep an eye on it. Hopefully you’ll find the same. All the best x

  • Thank you, that's reassuring.

    I had a staging ct for my thyroid yesterday, so I'm hoping the ENT surgeon will be able to tell me something next week.

  • I feel for you and send you strength.
    A few weeks ago, I attended my first surveillance mammogram and ten days later I received a letter that said I needed to return for further tests. It was frightening and I wasn’t sure how I would cope again and so soon too.

    However, after a different type of rolling mammogram and an US with the top woman, it was decided I had scar tissue.

    That twenty minutes was horrendous. 
    I hope you get the result you want and I’m sending you strength to face this hurdle and hope that you get the answers you need.

    x

  • Hi  , I’m being treated for a recurrence; BUT I only had a mastectomy and implant plus hormone busters the first time, I was considered low risk. However this time they’ve hit it harder, radiotherapy as it had not only snuck behind my implant but got to a node as well. I’m also having Abemaciclib and Exemestane as they felt the 2 years on Tamoxifen (swapped from Letrozole as I’d already got osteoporosis) had failed me. 

    I really hope your lump is a benign scar tissue of some sort, but please do use the site to vent your worries and anxiety. It’s what it’s here for.

    hugs xxx

    Moomy

  • Hi

    I'm sorry your going through this and sorry for your loss.

    On the benefits front. I have just qualified for PIP, universal credit and ESA as I'm unable to work. It didn't help being sacked back in September as in thier words " if you can't do the job then you're no use to us" which was great 5 weeks after surgery and 9 years service!!!

    All they required was proof of treatment plan. I've worked since I was 15 and now in my 40s.

    It may be worth looking into if like us financial struggling. As a cancer patient you may be entitled. I was!!

    CAB and Macmillan were really helpful with advice and which direction to take.

    Wishing you all the best x

  • Thank you. I'll give them a ring.

    I'm really sorry that was the response you had from your work- they didn't deserve you.