Do you ever get told you are “cancer free”

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Hi

Im a month post radiotherapy and 4 months post three lumpectomy ops.

feeling ok. Well - up and down actually!

my question is - I read some people have been told they are cancer free. No one has told me that and I have had no post treatment scan. Been told no point until one year post op. Is that everyone’s experience and is that when they might - fingers crossed- say it’s gone??

I don’t really know what my status is and it’s slightly doing my head in

thanks! 

  • Hi, my oncologist told me he never tells a patient they are cancer free. He informs them that there is no evidence of cancer (NED).

  • Hi  

    I have had 2 different types of cancer and, like Shade, have never been told that I'm "cancer free" or that "it's gone". 

    I have been told after surgery that they were able to remove all of the lump/lesion though.

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  • Hi  , the terminology used seems to vary. Like you, I’ve read posts here from people who’ve been told they’re cancer free but that’s never been said to me. I’m 6 years post diagnosis, had lumpectomy, sentinel node sampling followed by radiotherapy, and have been on Anastrozole for nearly 6 years. So far so good! I think the letters following my annual mammograms just said ‘no evidence of disease’ as mentioned above. I think that’s the way I’d describe myself as who can ever say for sure that a patient is ‘cancer free’, at any point? Re scans, I think that also depends on the initial diagnosis and treatments. I’ve only ever had mammograms, ultrasounds when necessary (eg when I had some nipple discharge a couple of years ago - nothing untoward found) and 2 yearly dexa scans to monitor bone density as I’m on Anastrozole and have osteopenia (precursor to osteoporosis). 
    I think feeling up and down is very normal at your stage - there’s a lovely member here who uses the username ‘Whathappened’ and I still sometimes think that! There’s also a paper by Dr Peter Harvey called something like ‘When treatment finishes’ which you can Google (I can’t post links here) and I’ve found it very useful over the years. 
    Sorry very long ramble!! I blame the Anastrozole for making me woolly headed and unable to be concise! Love and hugs, HFxx

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
  • Hi

    It was my surgeon that said " we got it all. We got the whole tumour. There is no evidence of cancer left".

    My oncologist echoed the same. My chemo is a preventative therapy as the DX score was high. I don't doubt what they say but it does make my brain wonder!!

    I've had no post surgery scan either. But as I don't meet the age bracket I won't get regular mammograms for another 5 to 10 years. It's only been 4 months since surgery

    I'm just riding the chemo train at the moment. Hoping for the light at the end of tunnel.

    Wish you all the best and you get there answers you are looking for