Lymphodema, now carpal tunnel syndrome

Hi Kittycougar,

I had carpal tunnel after having my kids long before my cancer diagnosis and had both hands done in the space of a year. I found keeping my hands warm and exercise helped a lot even if it's uncomfortable. I had to have mine done as I lost feeling in two fingers on one hand. It took a while to get back the feeling but all ok now. The operation was under local anaesthetic too so done in a day surgery. 

I've been on Letrozole since June. The worst side effects for me have been the joint pain, mainly my knees, and fatigue. How are you finding it? 

Hope you hear soon from the hospital. x

Hi,thanks for your reply

I have trouble sleeping,still awake at 3 and 4am, and always so hot,even got a 4.5tog quilt but I'm still soo hot

• My back and legs are very painful,I have another dexa scan soon,my last one showed Osteopenia,walking up a slight incline or stairs are a problem, and when I've been sitting for a while i have difficulty getting up
• I'd rather keep taking the letrozole though,I have to try everything 
• Yes hopefully  I'll hear soon,gp thinks it could be connected to the lymphodema 
• Take care

I know what you mean. I'd rather put up with the side effects for now in the hope they improve over time. I used to wake up a few times every night before my diagnosis and it's carried on afterwards too. I tried the Sleepio app which is free through Macmillan and that's helped a lot. I still wake up but not for long and my sleep quality has improved too. And my little fan by the bed goes on and off all night too. Lol. My poor husband - luckily he sleeps through anything. 

Take care. x

It's not good is it

I'll have to try that app

Did you have node clearance?

Yes you too

X

As long as we're still here, that's what's important. I had lumpectomy and lymph nodes removed but 3/11 tested positive for cancer unfortunately. I've been fortunate that the only swelling is just under my armpit and upper arm but the exercises I had from the lymphoedema clinic help a lot. 

Hope you sleep better soon too. x

OK

That's good

Yes I do exercise s daily,my lymphodema started this January, over 18 months since I had therapeuticmammoplasty 

Yes I totally agree  still here!!

Aahh thank you

X