Is anyone else side effects? One of the side effects is diorheaha and I was told it would get better after 3M - it’s just awful and I’m now house bound cos I can’t go out
Hiya ,I can't actually help with your question as I have just taken my very first abemaciclib tablet this morning.
Reading the side effects ,I have been dreading starting on abemaciclib. In fact ,the prospect of taking it has depressed me more than all the chemo,surgery radiotherapy I have had in the last year .I have spoken to the oncologist about my worries but i am following his advice to try it and if it doesn't agree with me I can stop ir reduce dose. I really do want to do all I can to stop any reoccurrence but the thought of living with the possible effects of the tablets for 2 years seems overwhelming.
I think also part of it is that all the way through treatment, every conversation is about becoming cancer free and so positive .But now,every conversation seems to be about reoccurrence so I feel like it's just waiting to come back again .
Mine is because of a recurrence and I’m hoping I can cope with it at the given dose as I really want to stay cancer free now.
Felt very odd and unwell yesterday but I suspect it might have been in combination with the flu and COVID jabs I had on Friday as apart from the usual churning gut noises I’m feeling better today again.
Hi, I’m a year into the 2 year course of Abemaciclib and I have not yet developed a pattern with the dreaded D. Sometimes I can go 4 days without D and other times I have D on consecutive days. Life on Abemaciclib is a challenge but I try and live a normal life despite the unpredictable D and not having as much energy as I used to have. I just hope this drug prevents recurrence. Apart from fatigue and diarrhoea, the other side effect that drives me mad is watering eyes. I wish you well L2707 and I would like to give you a magic formula to reduce your side effects but unfortunately I’ve yet to find one. I did at one point think taking kefir daily helped but I have eaten so much of it I just can’t face it at the moment. I do sometimes take loperamide before I go out to prevent D and this usually works.
I took Buscopan tablets, however by month 2 I had had enough of the Abem' 150mg and asked for a reduced dose at 100mg. I am now diarroeah free and able to carry on about my business with no problems at all.
Sounds better, I seem to be getting half a day every week or so when I just feel rubbish, not just the D, I feel very nauseous at the same time. I’ll ask to go into a lowered dose when I see the Prof next, I think.
I started on Abemaciclib in July but did not get that side effect. I was advised that diarrhoea is a sign that the dose is too high. The lower dose does not affect the outcome. Your oncologist is best placed to help here. Best of luck
I started taking abemaciclib on Sunday. I was really scared to start taking it after hearing of the side effects .I spoke to my oncologist a few weeks ago because I couldn't understand why everyone is given the high dose but it seems the majority then have reduction in dose .I asked why can't we have low dosage and then increase if
ok .In my simple terms ,he said unlike chemo that is measured by weight ,height etc ,abemaciclib is a onesizefits all to start with and then if it's too much they reduce the dose to try and suit the patient and therefore they tolerate it better and are more likely to stay on it .I'm giving it a go but if it becomes unbearable I will be straight onto the chemo unit to get it reduced .I want to give it my best shot to prevent reoccurrence,but not to feel awful for the next 2 years .
Hi Caff1, I have been on abmeciclib for nearly the two years now was on 100g first of all then reduced to 50g I haven't found it that bad at all worried about when I stop it if I get a recurrence. You be fine
