I live alone and have had to cope with life and the effects of surgery and treatment. I have lovely friends who often didn't know what to say or do,but would have helped if I'd asked them for anything.
I managed everything myself despite overwhelming fatigue and some pain.
I see so many ads for 'comfort parcels', full of stuff I didn't need and would never use. But... one thing I've since thought of, and would have loved to have been given, is a book of help vouchers. Each one covering a chore like, going shopping, or cleaning the kitchen for me. ,would cash them in by handing one to a friend who would do the chore to give me some rest time. I wouldn't feel bad for asking. My friends would be ok knowing they were helping, and I wouldn't feel like I was risking compassion fatigue.
What do you guys think? If it's a good idea, maybe macmillan can produce these?
I kept being told 'youre so strong' or 'youre managing so well' when all I wanted to do was cry or sleep. The vouchers would have just left me feeling like I wasn't bothering people
I get that. Any appointment or test fills me with dread. But guess we just have to trust that the chemo does what it's meant to. Apparently the fear and anxiety lessens over time. Hopefully it's just a follow up appointment like mine was. Let me know how it goes. D
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