Hi - I was diagnosed with DCIS in June. Since then I’ve had SLNB, 2x lumpectomies, a mastectomy and a breast reduction. At every stage I have have had “unusual results” or set backs including the possibility of losing the nipple on my reduced side. I am totally fed up and an emotional wreck …. Angry, tearful, scared. My family don’t discuss my cancer with me as I think they are terrified. One of my kids said I was to move on now that I’ve had the mastectomy and not be “a victim”. It’s like they don’t understand what it’s like to have this hanging over you daily. I’ve been really positive for the last 6 months but now I feel like I’ve nothing left in the tank. Having cancer is a lonely place! Any advice?
Can you speak to your BC nurse. They may be able to refer you for a counselling session.
try to focus on other positives in life, treat yourself and take the time you need to heal, we often think we have to be strong all the time to beat cancer, but it really is ok to cry, shout and be angry.
it does get easier, (I’m three years on since diagnosis) but never quite goes away, so it’s important to find someone to chat things through with if you can.
You are not alone and whatever you feel is normal.
Hi DeeBee5 , great suggestions from Cyprusfav . I think very few family and friends can really understand what it’s like and in any case we’re all different in how we deal with it all. And you’re probably right that they are terrified to think too much about your cancer and the stuff you’re going through. I also think it’s a very common attitude from those not in this ‘club’ to think that you should ‘move on’ once main treatments are finished. There’s an article that you may find useful, I’ve come back to it many times over the years. I’ll hopefully post the link. I visited my nearest Maggie’s centre a year after my radiotherapy had finished, when I was struggling with work and side effects of my hormone therapy. It was such a relief to be somewhere where I didn’t have to pretend to be ok. I had some ear acupuncture there which was really helpful, and met a couple of people at the same stage as me - we’ve kept in touch ever since. So I wonder if there’s anywhere like that near you? I’ve also visited Future Dreams in London, a wonderful charity which supports anyone affected by breast cancer. They do online stuff if you’re not near London. I’ll try to post a link to that too. Sending love and a big virtual hug, HFxx
www.workingwithcancer.co.uk/.../After-the-treatment-finishes-then-what.pdf
Hi me again! This is hopefully the link to future dreams….
Thank you so much - your message has given me a bit of a boost!
I’m with you, emotional mess at the moment, people talk a out focusing on positive but i think we need to work through our grief too and it feels unfair when people just want us to move on. I assume your child is unable to emotionally deal with your diagnosis and it scares them to talk about it,
as recommended i would reach out to Maggies or ask for counselling, speaking with people who are dealing with the same issues, it helps me immensely because i don’t have to pretend its all ok all the time, and can just say I am a mess today and mad at the world and feeling like poo and everyone understands because this is not a cold or flu.
it has changed us all hugs, you are normal
are there support groups near you?
we have to accept the sadness too, but try not to let it consume us
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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