Just been told I have secondary breast cancer

Daisy12 I am so so sorry that you have secondary breast cancer. It’s certainly not news you want to receive or share with your loved ones. I know that you know it’s not your fault that you have cancer, this horrible disease picks on anyone but I can see why you would feel responsible for ruining things for your kids. I don’t think there is ever a right time for sharing such sad news so don’t beat yourself up over it.  I am sure all they will want to do is support you and be there for you. It’s ok to feel how you feel right now. 

Hi 

Sorry that you have had this news, especially at this time of year, emotions can be high for lots of reasons anyway.

I was diagnosed with secondary breast cancer in July, in spine and pelvis and it is treatable but not curable. I had two different types of radiotherapy. Sarb, ablative radiotherapy therapy was one of them, there will be threads on here.

I'm also now having fulvestrant injections, palbociclib tablets daily for 3 weeks then a week off along with dunsunab injections.

It's hard I admit as its a completely different mindset to my first diagnosis which was 2and a half years ago but you will find the strength. Whatever you feel is ok and if you want to stay in bed then do that but im pretty sure you will want to get up and enjoy what makes you happy.

Everyone is different so whatever works for you, just dont put too much pressure on yourself. I'm still working fulltime walking my dogs and very much looking forward, i just know i havnt got as long to look forward to! 

Ask the specialist nurse to complete the forms for you to get pip, there's nothing for you to do they should do it all and it's a huge help. 

I hope this helps, take care x

Thanks for this. Really appreciate the advice.

Thanks for this. I’m a bit of a mess at the minute. Has helped to share 

Just take each day as it  comes. Xx

I am sorry you have received this bad news. Lots of us live with secondary cancer and it does turn into the new normal fairly quickly. I found I had secondary cancer in September 22. I was approaching the end of treatment for my (supposedly early stage) primary cancer, when it was discovered as an accidental find on a scan for something else. In the 15 months that have followed, I have had treatment that hasn’t worked (an ablation), immunotherapy treatment that worked so well it caused my immune system to go on the rampage against healthy organs, periods of watch and wait, periods of trying to recover from the immune incident. But despite all that, here I am 15 months later and my cancer isn’t really any worse than it was when it was accidentally discovered. You just have to take it 1 day at a time. I know it’s easier said than done, but try to make Christmas as normal as possible. None of us know what lies round the corner. 

just sending biggest hugs for now

I’m so sorry you’ve had this diagnosis and hope you tolerate the coming treatment. I had my chemo with a lady who had been diagnosed with spinal secondaries 5 years previously and had 3 weekly treatments that were keeping it all under control and at bay. She was working full time, going on holiday, etc. you’d never have known to look at her. I hope you have the same experience. When I see posts like yours it does make me rage at the unfairness of it all. Lots of love x

Thanks chick. Trying to hold things together 

Thank you