Triple negative inflammatory BC

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Good morning all

New to this sight.  I was diagnosed 2 weeks ago and have my first oncology on Wednesday.  Not looking forward to the long road of treatment I am about to start but equally can’t wait.  Such an odd feeling isn’t it

  • Sorry to see you here, I was diagnosed in January it is a long journey but take every step a day at a time and take every treatment a week at a time. Don’t look at the long picture.  I am now starting my radiotherapy it seemed a long way off but I’m nearly there now and I look back and it did go quickly. I still got a few more treatments to carry on with but the worst is over with. Don’t look back keep looking forward and the time will soon go good look it is all doable xxx

  • Hi Foxy lady, also new to site had my 8th dose of treatment yesterday and struggling with all the side effects and low mood . 

  • Hi I’m also new to the site and the treatment. I completely agree on the worried about treatment not starting quickly enough and now my first chemo is scheduled I’m worried about starting. Grinning

    Lots of people here with lots of experience and advice which is great  

    We can do this, Muscleas janeym1 says one day, one week at a time. Still feels very unreal to me can’t quite believe I’m here  

    good luck with your first appointment  x

  • Hi mum of three , that must be hard with younger children , once treatment starts you’ll be on a better path and the medical team will support you with help and advice . I usually write down any concerns and go through my list with them like side effects and they do listen to you !

  • Hello all.....

    I am sorry you had to find this site but now you have, I think you will find a lot of support. You can ask whatever questions you might have. Someone will have shared your experience. If you post on a thread like  Awake , you can be angry, laugh or just share the ordinary with others who understand how you are feeling. Waiting for treatment can be scary.....that fear of the unknown....but as   has said, when you look back it was only a short time in the grand scheme of things. I know treatment isn't always pleasant.... ....I hope things are a bit easier today.....but in most cases they are extremely successful.   ....it will become much easier once you have chatted to your oncologist and have a plan. Unfortunately with TNBC there is no after treatment so I suspect you will need both chemo and radiotherapy  as a precaution against the cancer returning but it will be worth it .

    I was diagnosed with an agressive TNBC in 2015. I didn't always react well to the drugs and do have a few permanent problems but these are less likely now because the oncologists have recognised the difficulties and have changed the doses to be less harsh. The fact is they worked. I have had clear mammograms since 2016 and am here eight years on to tell you. 

    I wish you all well. A difficult few months certainly but hope of no cancer at the end. 

    1. I
  • Thanks for advice Lacomtekp ! Have a good weekend xx

  • Hi Wave 8th dose, well done you!! I’m sorry to hear about your low mood, do you find anything helps?

  • Thank you for cheering me up.  8 years on, really chuffed to hear good news.  It can all feel a bit negative sometimes especially when you know you need to keep a positive mindset 

  • Walking and being outside !!!