A break from Letrezole

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Hello Anyone

i have done a year and had all the acute treatment  and have just finished herceptin infusions but the 18th one has impaired my heArt so my oncologist has put me on a low dose heart pill that has given me a cough ! Having an echo in a month so fingers crossed my heart will be ok . He also stopped Letrezole for 3 months as my side effects were so bad ! Achey limbs , spasam  in my legs at night but worst of all my hair is so thin , I think it would have been better to loose it all than this thinning .. I feel a bit uncomfortable not taking the Letrezole .. has anyone else experienced this ? If so has your heart recovered ? 
thanks 

pink Betty

  • FormerMember
    FormerMember

    Interesting you say this as I think someone commented on this so months ago. I am now in pain in my back which spasms in my legs and is worse after sitting/lyingdown. I thought at first it was sciatica but think it may be the Letrozole. (Been on for 1yr). I’ve tried to ‘go with it’ but oncologist wants me to have a bone scan before deciding. You are under good care, you can only ask them if they think it’s the right thing to do…best wishes xxx