Unable to sleep more than a few hours each night since diagnosis

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Here I am yet again,  at stupid o’clock in the morning feeling exhausted but unable to sleep throughout the night. I drop off to sleep ok but waking each night between 2.30 and 3.30am since my diagnosis of BC just over 2 weeks ago. I’ve tried Nytol and other herbal remedies unsuccessfully. I keep busy all day every day to distract my thoughts of BC so am pretty exhausted by the evening and cannot wait to go to bed by around 11pm. Is this natural to struggle with sleeping following diagnosis? Does it return to normal in time? Is there anything I can take to help me sleep through the night? I find the nights the worst as that’s when all thoughts creep into my head and it’s the time I become emotional when Alone. By around 7-8M I’ve usually crashed on the sofa for  an hour as so tired again. I just want to get myself into a food routine again and not be yawning throughout the afternoons which can be embarrassing when with others as they might think I’m bored of them!! I also used to enjoy being out and having lunch\ shopping with sister but now I can’t wait to go home as so tired. I’m die to have  a double mastectomy in a few weeks and concerned my sleep pattern will become more erratic and impact on my daily routine and functional ability help!!

  • Hello,

    I hope you are asleep now but if not...I'm very sorry you find yourself on this web site but you are welcome.

    You will find that on the Awake thread, most contributors have found themselves.....and still do from time to time.....in your position of being unable to sleep at night and feeling very tired during daytime.

    In your case I suspect being newly doagnosed....it's a big shock to the system....and not knowing how things will progress...have interrupted your normal sleep patterns. I can understand totally how yòu don't feel like shopping with your sister and why you are dozing in the evening. These are very normal reactions to an enormous change for you....the double mastectomy.  While this will undoubtedly be an aid to a good recovery, it is nonetheless traumatic for you to anticipate. 

    Will sleep return to normal? Probably.....but there are still times eight years on when my mind won't shut down and I don't sleep. I had a lumpectomy for TNBC so there is always a possibility that a cancer may develop again and that fear hasn't quite left me. 

    Over the next weeks if you continue to have difficulties, do post on the Awake thread. There are a lot of regular contributors there who will empathise or offer advice from experience. They will probably see your post more quickly there than on a new thread although on a hot summer Wimbledon saturday, they may be watching tennis!

    I wish you well with your future treatment. As the shock passes and the treatment plans start, you will feel more in control and more informed which will help you with your sleeping.

    Take care. Love Karen

    1. I
  • Hi, I’m so sorry to hear you’re having trouble sleeping. Those hours lying awake with your mind racing are very difficult, especially while everyone else is asleep. I was exactly the same when I was diagnosed with BC in March. I couldn’t sleep, I couldn’t eat, and I couldn’t think about anything else. It took me a long time to process the shock of a cancer diagnosis, and I’m sure from reading other posts on here that’s a common and a normal reaction. 
    I’m now 7 weeks on from my mastectomy and reconstruction surgery, and my sleep is much better than in those early weeks before my treatment had started. I do still wake in the night as I’m still adjusting to taking tamoxifen which makes me feel very hot. However I can often get back to sleep and I’m not suffering with that crushing 3am anxiety and racing thoughts. I hope things will settle down for you too and your sleep will improve as you process the shock. It’s also great news you’ve got your date for surgery, and that is happening soon. I wish you all the very best for that. Take care, Rosie xx

  • Sorry you are not sleeping. I was the same and now for the first time ever I am on sleeping tablets. My GP put me on promethazine 25mg I can take up to tablets a day

     Wish I didn't have to but I need the sleep